Beta-Spectrin 1 Sptbn1 Foundation Inc

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Providing support to those effected by SPTBN1 For questions or to further connect, please reach us at SPTBN1foracure@gmail.com

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920518592

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Cos Cob

Address: 10 Maplewood Dr, Cos CobWeb: Sign in to see organisation websiteX (Twitter): SPTBN1_SupportICO: 920518592

Beta Spectrin Foundation Learn Share Find Community We are a global community for those wanting to learn more about SPTBN1. Led by a group of parents doctors and researchers we have seen first hand the impact of hard work and dedication looks like. We look forward to supporting all of those impacted by SPTBN1 and its subsequent varients. We welcome you to the Beta Spectrin Foundation.

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News about from their social media (Facebook and X).

Daniel

🌍 So grateful for this amazing initiative! Let's spread awareness and support one another as we navigate the challenges of SPTBN1 together. 💪 #SPTBN1Family

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Dorothy

2. How can we enhance awareness and education about SPTBN1 in local communities to foster understanding and support for those affected?

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Clara

💙 Thank you for all the incredible work you do, Beta Spectrin Foundation! Your support for families affected by SPTBN1 is truly inspiring. Together, we can make a difference! #FindCommunity

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Terry

1. What resources are available for newly diagnosed individuals and their families dealing with SPTBN1, and how can our community better support them during this challenging time?

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