Beta-Spectrin 1 Sptbn1 Foundation Inc
Providing support to those effected by SPTBN1 For questions or to further connect, please reach us at SPTBN1foracure@gmail.com
ICO
920518592
X (Twitter)
6
Address
Cos Cob
Beta Spectrin Foundation Learn Share Find Community We are a global community for those wanting to learn more about SPTBN1. Led by a group of parents doctors and researchers we have seen first hand the impact of hard work and dedication looks like. We look forward to supporting all of those impacted by SPTBN1 and its subsequent varients. We welcome you to the Beta Spectrin Foundation.
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Cos Cob
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