Nrxn1 Network
NRXN1 Network
991963459
Lewisburg, PA 17837 United States
nrxn1network.org
Nrxn1Network
Podobné organizace
NEUROFIBROMATOSIS INC |
|
Bridge the Gap |
|
National Niemann-Pick Disease Foundation |
|
International FOXP1 Foundation |
|
Channeling Hope Foundation |
Podobné organizace global
THE TUBEROUS SCLEROSIS ASSOCIATION |
|
LDN RESEARCH TRUST |
|
THE CONSORTIUM FOR THERAPEUTIC COMMUNITIES (TCTC) |
|
NARCOLEPSY UK |
|
Sarcoidosis Australia |
More from Lewisburg
LEWISBURG ARTS COUNCIL INC |
|
Stewardship Resources |
|
CHERISHED CATS RESCUE ALLIANCE INC |
|
BUFFALO VALLEY REGIONAL TRAINING CENTER |
|
CENTRAL PENNSYLVANIA WORKFORCE |
News
Today is #RareDiseaseDay. Although NRXN1 Deletion Syndrome is rare, one recent study suggests as many as 1 in 1400 people may have it— and many have never been diagnosed. Consider making a donation to NRXN1 Network in honor of Rare Disease Day! https://t.co/DcaLKYLqq3 https://t.co/bNNVpnzniU (tw)
#ShineYourSearchlight✨ Your annual updates to Simons Searchlight help researchers understand how NRXN1 Deletion evolves over time, benefiting families like yours. 📊 Visit your dashboard to share updates and complete surveys: https://t.co/BSwF4DJfv9… https://t.co/lA2iAH8MGO (tw)
Poslední diskuze
Nearby
4.5
Lewisburg
About the organization
- H01 -
NRXN1 Network Providing connections accurate information and hope for the future. What is NRXN1. Who We Are Help Us Learn More Contact Us Do you have questions about NRXN1 disorder or suggestions for improvement. Would you like to help us meet our goals.
Alliance/Advocacy Organizations
