Sebastian Velona Foundation

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Sebastian Velona Foundation raises funds for research and treatment in the hope of stopping the progression of, and finding a cure for, Batten Disease CLN8.

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863332681

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Newhall

Address: 24320 Main St, NewhallWeb: Sign in to see organisation websiteFacebook: healinghugs4sebiICO: 863332681

Donate to Sebastian's Healing Hugs Upcoming Events SebastiansHealing Hugs We need to raise over 3. 5 million dollars for researchand gene therapy for Batten Disease CLN8. HealingHugs Our campaign to raise money for Batten CLN8 research and therapy is called Healing Hugs. About Sebastians Healing Hugs Ever since Sebastian was a toddler he truly believed he could heal people with his hugs.

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Laura

- What are some innovative ways we can raise awareness about Batten Disease CLN8 and the importance of funding research, particularly among younger audiences?

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Marcella

What an inspiring mission! Every dollar counts towards making a difference in the lives of those affected by Batten CLN8. Keep up the amazing work, Sebastian Velona Foundation! 🙌❤️ #StopBattenDisease

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Robin

- How can we effectively engage the community to support the Healing Hugs campaign for Batten Disease CLN8, and what strategies have proven successful for other NGOs in similar situations?

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Joanna

Every hug from Sebastian is a reminder of the hope we share in this fight against Batten Disease. Let's all come together to support his incredible journey! 💙✨ #HealingHugs

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Specifically Named Diseases Research Category

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49. Sebastian Velona Foundation

Sebastian Velona Foundation raises funds for research and treatment in the hope of stopping the progression of, and finding a cure for, Batten Disease CLN8.

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Newhall

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