Sebastian Velona Foundation
Sebastian Velona Foundation raises funds for research and treatment in the hope of stopping the progression of, and finding a cure for, Batten Disease CLN8.
ICO
863332681
4072
Web
Sign in to see organisation website
Address
Newhall
Donate to Sebastian's Healing Hugs Upcoming Events SebastiansHealing Hugs We need to raise over 3. 5 million dollars for researchand gene therapy for Batten Disease CLN8. HealingHugs Our campaign to raise money for Batten CLN8 research and therapy is called Healing Hugs. About Sebastians Healing Hugs Ever since Sebastian was a toddler he truly believed he could heal people with his hugs.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Specifically Named Diseases Research Category
Organisations with similar rank to Sebastian Velona Foundation in category Specifically Named Diseases Research
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th.
48. JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION
The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians a.
49. Sebastian Velona Foundation
Sebastian Velona Foundation raises funds for research and treatment in the hope of stopping the progression of, and finding a cure for, Batten Disease CLN8.
50. ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC
https://linktr.
Raising awareness and funding for Wolfram Syndrome research, an ultra rare disease.
Similar organisations
Similar organisations to Sebastian Velona Foundation based on mission, location, activites.
Our mission is to raise global awareness for Duchenne muscular dystrophy, to fund research and find a cure.
A Foundation Building Strength Inc
Our mission is to find treatments for Nemaline Myopathy.
We are changing how scientific research is done by working to find a cure for NGLY1 Deficiency.
The Guthy-Jackson Research Foundation, Inc.
Through research & collaboration, we make medical breakthroughs for those with NMO.
Similar Organisations Worldwide
Organisations in the world similar to Sebastian Velona Foundation.
hugs childrens cancer charity (uk)
Supporting families affected with childhood cancer through Respite, well being events and peer to peer support.
Interesting nearby
Interesting organisations close by to residence of Sebastian Velona Foundation
The Guthy-Jackson Research Foundation, Inc.
Through research & collaboration, we make medical breakthroughs for those with NMO.
Our Mission: Make ME/CFS, Long Covid and other post-infection diseases widely understood, diagnosable, and treatable.
Cure SZT2 is a non-profit organization dedicated to families affected by the genetic mutation SZT2.
Similar social media (4072)
Organisations with similar social media impact to Sebastian Velona Foundation
BHcare is a Certified Community Behavioral Health Clinic (#CCBHC) providing an integrated system of care for individuals and families struggling with mental health, substance use and domestic violence.
BHcare is a Certified Community Behavioral Health Clinic (#CCBHC) providing an integrated system of care for individuals and families struggling with mental health, substance use and domestic violence.
89900. Sebastian Velona Foundation
Sebastian Velona Foundation raises funds for research and treatment in the hope of stopping the progression of, and finding a cure for, Batten Disease CLN8.
89901. North Florida Bicycle Club Inc
The North Florida Bicycle Club was founded to encourage all people to participate in bicycling–a fun .
89902. Edgewater Development Corporation
Supporting, promoting, and connecting the Edgewater business community, since 1984.
Join us and make a difference for the future!
Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
Joanna
Like Wikipedia for nonprofits — but even more inspiring.
Lucy
Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Patrick
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Paul
Clean, community-driven, and full of heart — love it.
Catherine
What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
Jessica
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Stanislava
2025-10-28
Great news from Oregon! A federal judge has just ruled that sex education programs, which include important discussions on gender identity, must continue to receive grant funding. This is a huge win for inclusive education and ensuring every student feels represented! 🌈📚 #InclusivityMatters #EducationForAll
Judge in Oregon bars feds from halting grant funding for sex ed that involves gender identity
Oregon Live
Like Comment