United Porphyrias Association
The Future of Porphyria...Raising Awareness, Research and Therapies The United Porphyrias Association is committed to improving the quality of life of the porphyria patient community and is relentlessly focused on advancing disease awareness, research, and therapies in all the porphyrias.
Founded
2021
0
X (Twitter)
172
Address
Bethesda
United Porphyrias Association Everything you need for your porphyria journey UNITED PORPHYRIAS ASSOCIATION We are committed to improving the quality of life of the porphyria community and focused on advancing disease awareness research and therapies for all the porphyrias. Quick Access Links Seeking a Diagnosis Think you may have porphyria. Learn how porphyria is diagnosed and how you can access testing. Living with Porphyria Porphyria can impact every part of your life.
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