Can simple blood tests help monitor liver damage in Wilson disease? At EASL Congress2025, Zoe Marino shared encouraging new research using data from patients in our Wilson Disease Registry, as well as centers in Barcelona and Aarhus. The study looked at several non-invasive tests—including basic blood work and liver scans—to see how well they could detect advanced liver scarring or fibrosis in people with Wilson disease. Two of the blood tests (called SAFE and APRI) were especially helpful at ruling out serious liver damage. “We think it will be useful. We are also exploring non-invasive evaluation for fatty change in the liver often seen in WD earlier on.” – Michael Schilsky, co-author. These tools could help doctors track liver health over time without needing a liverbiopsy, and may also be useful in monitoring treatment and predicting long-term outcomes. #liverdisease #raredisease #easl2025_amsterdam (fb)

We are delighted to welcome Dr. Valerie Suski and Dr. Fei-Pi (Phoebe) Lin, the new director and co-director of the Pittsburgh WD Center of Excellence. Dr. Suski is an Associate Professor of Neurology, Division Chief, Movement Disorders Division, Director, Movement Disorders Fellowship and Director at University of Pittsburgh Medical Center (UPMC), HDSA Center of Excellence Dr. Lin is a Clinical Assistant Professor of Medicine, UPMC Center for Liver Care and at the UPMC Thomas E. Starzl Transplantation Institute They are joined by other specialists with expertise in liver transplantation, neurology, ophthalmology, physical medicine and rehabilitation, neuropsychology, speech language, dietician and social work. For appointment information, please call 412.692.2286 For a complete list of centers and contact information, visit www.wilsondisease.org, Living with Wilson disease, Centers of Excellence (fb)