Rarekc Foundation
Our mission is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community.
ICO
823511792
0
Web
rarekc.org
Address
Overland Park
Home - RareKC Our Board Our Ambassadors Our Partners Our Story When Kelly Ranallo and her husband George lost their daughter Katie to a rare condition they felt their world closing in around them. After receiving the news of yet another rare diagnosis affecting their other daughter Kelly and George began their rare journey. In navigating their daughters Turners Syndrome diagnosis Kelly began to conceive of an organization where individuals families physicians researchers and community partners would come together to share ideas overcome the unique challenges and help reduce the isolation of living with a rare disease in Kansas City thats when RareKC was born. Mission RareKCs mission is to drive innovation in the diagnosis care and treatment of rare diseases by connecting and inspiring our community.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Discussions
Odpovědí v diskuzi
1
1. How can RareKC improve its outreach efforts to better connect with families affected by rare diseases in the Kansas City area?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What role do you think collaboration with local healthcare providers and researchers can play in advancing the mission of RareKC?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Such an incredible mission! It's heartwarming to see a community come together to support families facing rare diseases. 💜 #RareKC #TogetherWeCan
Brooklyn Simmons
Product Manager
Thank you, RareKC, for shining a light on the challenges of rare diseases and providing hope and resources to those in need. Your work is truly inspiring! 🌟 #CommunitySupport #RareJourney
Brooklyn Simmons
Product Manager
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