Kinslow Tubb4a Foundation Inc

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Our mission is to provide information on accessible and equitable treatment options for every child affected by TUBB4A-related leukodystrophy, regardless of their geographical location or socioeconomic status. We are committed to relentlessly pursuing research, collaboration, and advocacy to ensure that no child's journey is defined by limitations, but rather by possibilities for a healthier and brighter future.

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933906920

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Argyle

Address: 1429 Westborough Ln, ArgyleWeb: Sign in to see organisation websiteICO: 933906920

Kinslow TUBB4A Foundation A Disease May Be Rare But Hope Should Not Be Thank you for joining us in our fight. What is TUBB4A. TUBB4A is a gene responsible for encoding a protein called tubulin beta4A which plays a crucial role in the structure and function of microtubules essential components of cell architecture. Global Impact of TUBB4A TUBB4A mutations have a global impact on individuals and families contributing to various neurological disorders such as dystonia and hypomyelination.

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George

Thank you for shedding light on TUBB4A and the challenges faced by so many. Your commitment to advocating for equitable treatment options is truly commendable! Let's spread hope and make a difference! 🌟πŸ’ͺ

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Evelyn

1. What innovative strategies can we implement to raise awareness about TUBB4A-related disorders within medical communities and among the general public?

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Goldie

Absolutely inspired by the incredible work the Kinslow Tubb4a Foundation is doing to support families affected by TUBB4A! Together, we can raise awareness and drive the research needed for a brighter future! πŸ’šπŸ™

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Rachel

2. How can we foster collaboration between researchers, healthcare providers, and families affected by TUBB4A mutations to advance diagnostics and treatment options?

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