Bretts Bands

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Platte City

Address: 16120 NW 124th St, Platte CityWeb: Sign in to see organisation websiteICO: 852075940

Brett's Bands for SUDEP Awareness – Raising awareness for epilepsy and sudden unexpected death in epilepsy (SUDEP). click Here to sign up for pickleball pairs tournament 050825 On December 21 2019 lives were shattered when 13 year old Brett Hollandsworth died in his sleep from a rare complication of epilepsy. Sudden unexpected death in epilepsy SUDEP claims more victims than SIDS annually yet it is rarely spoken of in our medical community. Most families who suffer this loss report that they were never told about SUDEP. It is our mission to change this narrative.

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Diana

I'm signing up for the pickleball tournament! Excited to participate and help raise awareness for SUDEP. Together, we can make a difference! πŸ₯³πŸ“

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Michael

Such a beautiful way to honor Brett's memory and raise awareness for SUDEP! Let's spread the word and support this important cause! πŸ’œ

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Simone

2. What strategies can NGOs employ to raise awareness about epilepsy and SUDEP in communities that are traditionally underserved or have limited access to healthcare resources?

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Clara

1. How can we better educate medical professionals and families about SUDEP to ensure that this critical information is shared more widely and effectively?

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Platte City

Organisations from Bretts Bands

1. PLATTE CITY UNITED METHODIST CHURCH

The United Methodist Church is a worldwide connection of close to 10 million members in over 100 countries including Africa, Asia, Europe and the United States.

2. American Maine Anjou Association

The AMAA would like to keep everyone updated on the going-ons in the office.

3. National Association of Farm Broadcasters Foundation

NAFB serves the interest of the ag community, creating value for its member stations and networks.

4. National Assn of Farm Broadcasters

NAFB serves the interest of the ag community, creating value for its member stations and networks.

5. Kc Book Beat

KC Book Beat is a 501c3 nonprofit dedicated to celebrating and promoting the vibrant literary community of Kansas City.

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SUDEP ACTION (uk)

UK’s only charity that specialises in supporting and involving people bereaved by epilepsy .

PETE'S DRAGONS (uk)

Award winning charity specialising in suicide bereavement support for people and families of all ages.

THE DANIEL WILKINSON FOUNDATION (uk)

A registered charity in memory of Daniel Wilkinson Charity Commission No.

SUDEP AWARE (ca)

Working Toward a World Without Epilepsy.

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