ICO
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sketchnf.org
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Holladay
SketchNF | Empowering The Pediatric Neurofibromatosis Community About Us Our Impact Our Team SketchNF Superheroes Coloring Book More OUR START Shilp was 14 when Sahil told him he had tumors on his body. Diagnosed with neurofibromatosis type 1 at the age of 1 Sahil had been symptomfree until the age of 9. Over the next 7 years Sahil has endured nights of splitting migraines wracking neck pain and even surgery to remove the tumors in his skull. Shilp did his best to support him but could never truly understand what he was going through Sahil needed people that could understand his situation.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
Neurofibromatosis (NF) Network is the leading national organization advocating for federal funding.
OUR MISSION Increase understanding of NF, empower affected families and advance research of preventative therapies.
Help Jack Cure NF.
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Discussions
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1. How can art therapy be integrated into the treatment and support process for children with neurofibromatosis?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. What strategies can we implement to raise awareness about pediatric neurofibromatosis and the importance of community support for affected families?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💖 Such an incredible initiative! Love how SketchNF is using art to empower kids with NF. Together, we can make a difference one sketch at a time! 🎨✨
Brooklyn Simmons
Product Manager
🌟 What a beautiful way to support children facing challenges! Excited to see the impact SketchNF will have on the NF community. Keep up the amazing work! 💪💖
Brooklyn Simmons
Product Manager
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