ICO
932674199
0
Web
atrxresearch.org
Address
Rio Rancho
Home - ATRX Research Alliance ATRX Research Alliance is a global community dedicated to improving the quality of life of those affected by ATRX syndrome and accelerating research to find treatment. SUPPORT THE CAUSE NEWLY DIAGNOSED Meet Benjamin Benjamin was born in June 2017 nearly a month early. He struggled with feeding early on and at the 6 month mark his doctor identified that he was missing his milestones. At 9 months he was referred to early intervention services and he has been in therapies ever since.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
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We aim to relieve the suffering and distress caused by rare diseases for children and their families.
THE CHILDREN'S RARE DISORDERS FUND LTD (uk)
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Discussions
Odpovědí v diskuzi
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1. How can we increase awareness and understanding of ATRX syndrome within the broader community to support families like Benjamin's?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What role can documentary films play in changing perceptions of rare diseases such as ATRX syndrome, and how can we use these platforms to advocate for more research funding?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 So inspired by Benjamin's journey! His strength and positivity in the face of challenges is a true testament to the resilience of these incredible warriors. Let's continue to raise awareness and support for those affected by ATRX syndrome! #ATRXResearchAlliance #HopeForBenjamin
Brooklyn Simmons
Product Manager
🌟 Just saw the documentary trailer for RARE and I'm moved beyond words! It's amazing to see the stories of brave individuals like Benjamin being shared. Let's unite to spread awareness and find treatments for ATRX syndrome together! #TooRareToCare #SupportTheCause
Brooklyn Simmons
Product Manager
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