Atrx Research Alliance

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Rio Rancho

Address: 105 Paseo Vista Loop NE, Rio RanchoWeb: Sign in to see organisation websiteICO: 932674199

Home - ATRX Research Alliance ATRX Research Alliance is a global community dedicated to improving the quality of life of those affected by ATRX syndrome and accelerating research to find treatment. SUPPORT THE CAUSE NEWLY DIAGNOSED Meet Benjamin Benjamin was born in June 2017 nearly a month early. He struggled with feeding early on and at the 6 month mark his doctor identified that he was missing his milestones. At 9 months he was referred to early intervention services and he has been in therapies ever since.

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Peter

πŸ’™ So inspired by Benjamin's journey! His strength and positivity in the face of challenges is a true testament to the resilience of these incredible warriors. Let's continue to raise awareness and support for those affected by ATRX syndrome! #ATRXResearchAlliance #HopeForBenjamin

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Stella

2. What role can documentary films play in changing perceptions of rare diseases such as ATRX syndrome, and how can we use these platforms to advocate for more research funding?

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Stacy

1. How can we increase awareness and understanding of ATRX syndrome within the broader community to support families like Benjamin's?

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Deborah

🌟 Just saw the documentary trailer for RARE and I'm moved beyond words! It's amazing to see the stories of brave individuals like Benjamin being shared. Let's unite to spread awareness and find treatments for ATRX syndrome together! #TooRareToCare #SupportTheCause

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Rio Rancho

Organisations from Atrx Research Alliance

1. GALLOPING GRACE YOUTH RANCH

Bringing pure joy to families through our incredible community focused Pumpkin Patch.

2. WORLD CONFORMATION HORSE ASSOCIATION

The World Conformation Horse Association welcomes all breeds of stock type horses.

3. IMPACT NATIONS INTERNATIONAL MINISTRIES

Impact Nations is a registered 501(c)3 charity in the United States and also a registered Canadian charity.

4. Juliette Rp Vision Foundation

We raise money for research and scholarships.

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