Jansens Foundation

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Founder & Executive Director of The Jansen's Foundation. KOL,TEDx Speaker, Educator, Change Leader, https://t.co/Ty1g3WHftT Opinions are my own THE MISSION OF THE JANSEN'S FOUNDATION IS TO BRING AWARENESS AND SUPPORT RESEARCH IN HOPES OF BRINGING ABOUT A CURE TO THIS DEBILITATING SKELETAL CONDITION.

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ELKHORN

Address: PO BOX 115, ELKHORNWeb: Sign in to see organisation websiteX (Twitter): NeenaNizarICO: 815444211

The Jansen's Foundation THE MISSION OF THE JANSENS FOUNDATION IS TO BRING AWARENESS AND SUPPORT RESEARCH IN HOPES OF BRINGING ABOUT A CURE TO THIS DEBILITATING SKELETAL CONDITION. Check Out Our Newsletter. and Subscribe for future News. The Jansens Foundation hosts first ever Skeletal Dysplasia Conference in Nebraska The Jansens Foundation visits Amicus Therapeutics for the Healing Beyond the Diagnosis initiative.

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Victoria

Absolutely inspired by the work being done at The Jansen's Foundation! Raising awareness for skeletal dysplasias is crucial, and I can't wait to see the positive impact from the upcoming Skeletal Dysplasia Conference. πŸ’ͺ❀️ #RareDiseaseDay #HopeForCures

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Veronica

So proud to support The Jansen's Foundation in their mission to find a cure for JMC! Together, we can create understanding and bring hope to those affected by this condition. Let’s keep spreading the word! πŸ™Œβœ¨ #ChangeLeaders #AwarenessMatters

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Emily

2. What strategies can NGOs like the Jansen's Foundation implement to foster collaboration between researchers and healthcare professionals to expedite advancements in treatment options for rare skeletal conditions?

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Isabel

1. How can we effectively engage the public and raise awareness about rare diseases like Jansen's metaphyseal chondrodysplasia to support initiatives such as Rare Disease Day?

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