Next Generation of Cystinosis
Our vision is to be an organization run by and for adults 18 years and older affected by cystinosis. Our mission is to have open and honest dialogue about the issues affecting them. Next Generation of Cystinosis is a non-profit volunteer-run organization incorporated in 2020.
ICO
851944920
0
Web
nextgencystinosis.org
Address
Ankeny
Next Generation of Cystinosis Next Generation of Cystinosis Run By and For Adult Patients Welcome to Next Generation ofCystinosis Have you ever felt lost isolated sad and depressed. Are you struggling to live your fullest life. I hear you I am experiencing this as well. My name is Mika Jayne Covington.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Discussions
Odpovědí v diskuzi
1
1. What strategies have you found effective in coping with the emotional challenges of living with cystinosis, and how can we support one another in this journey?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we raise awareness about cystinosis among healthcare professionals to ensure better understanding and treatment options for adult patients?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💜 Thank you, Mika, for creating a space where we can connect and share our experiences. It's so important to know we’re not alone in this journey! #CystinosisCommunity
Brooklyn Simmons
Product Manager
🌟 Love what this organization stands for! Together, we can break the stigma and support each other in living our best lives. Let’s continue the conversation! #NextGenCystinosis
Brooklyn Simmons
Product Manager
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Kendall Monroe
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A brilliant resource for anyone who wants to do good more effectively.
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Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
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What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
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Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
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Product Manager
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