Rare Genes Movement

844654027
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Point Pleasant, NJ 08742 USA
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raregenesmovement.org
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About the organization

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Children with rare genes have dreams too. The global impact of rare diseases is huge but silent. Our mission is to be the voice for those affected by rare disorders and fund the research to find viable treatment options beginning with WeidemannSteiner Syndrome WSS. 400 million people are diagnosed with a rare disease globally.

Diseases, Disorders, Medical Disciplines N.E.C.
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