Rare Genes Movement
Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder. Children with rare genetic disorders have dreams to
ICO
844654027
722
Web
Sign in to see organisation website
Address
Point Pleasant
Rare Genes Movement Children with rare genes have dreams too. The global impact of rare diseases is huge but silent. Our mission is to be the voice for those affected by rare disorders and fund the research to find viable treatment options beginning with WeidemannSteiner Syndrome WSS. 400 million people are diagnosed with a rare disease globally.
From Social media
News about from their social media (Facebook and X).
Rare Genes Movement
Behind this stat is a bigger truth: 𧬠Most rare diseases donβt have a treatment. In fact, 95% of the 10,000+ known rare diseases have no FDA-approved therapy. Families often spend 5β7 years searching for an accurate diagnosis, seeing countless doctors along the way.
Like Comment
Data about organisation
Diseases, Disorders, Medical Disciplines N.E.C. Category
Organisations with similar rank to Rare Genes Movement in category Diseases, Disorders, Medical Disciplines N.E.C.
139. NATIONAL ARAB AMERICAN MEDICAL ASSOCIATION
Since 1975, NAAMA has been an all inclusive association that acts as the voice of all Arab American healthcare professionals.
Making sure children with speech disorders receive the speech therapy and technology they need.
Our vision is to see every child have access to proper medical, therapeutic, and educational resourc.
143. BUTTERFLIES BY BLAQ INCORPORATED
Butterflies BBI is a 501c3 Non-Profit Organization which provides FREE Hair Replacements and Solutions to children with medical hair-loss.
Point Pleasant
Organisations from Rare Genes Movement
2. Jersey Shore Junior Golf Inc DBA First Tee Jersey Shore
At First Tee, weβre empowering kids and teens through the game of golf.
3. Mason County Action Group Inc
Programs for seniors 60+ in Mason County, WV.
Our vision is to see every child have access to proper medical, therapeutic, and educational resourc.
Similar organisations
Similar organisations to Rare Genes Movement based on mission, location, activites.
Drugs for Neglected Diseases Initiative, North America Inc.
Non-profit developing safe, effective & affordable treatments for the most neglected patients.
NATIONAL BLEEDING DISORDERS FOUNDATION
Dedicated to finding better treatments and cures for inheritable blood disorders and to preventing the complications of these disorders through education.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation provides research and support for the mito community.
MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION
MSU is a virtual, all-volunteer, patient-led 501(c)(3) nonprofit improving the lives of and empowering those fighting the rare autoimmune diseases, myositis, through education, support, financial assistance, patient-centered research, and advocacy.
Similar Organisations Worldwide
Organisations in the world similar to Rare Genes Movement.
Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare an.
Information, updates and advice about Kleefstra Syndrome, hosted by Kleefstra Syndrome UK.
THE CHILDREN'S RARE DISORDERS FUND LTD (uk)
The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.
RARE CHROMOSOME DISORDER SUPPORT GROUP (uk)
Support, Information and networking to help those with rare chromosome & gene disorders and their families.
CANADIAN ORGANIZATION FOR RARE DISORDERS (CORD) (ca)
CORD is Canada's national network for organizations representing all those with rare disorders.
Interesting nearby
Interesting organisations close by to residence of Rare Genes Movement
Lower Eastside Service Center Inc
Embracing Your Recovery Journey Through Love, Energy, Safety, and Compassion.
Airway Revolution Foundation Inc
Promoting Airway health by creating projects that generate awareness & discussion.
Similar social media (722)
Organisations with similar social media impact to Rare Genes Movement
184005. Students for Refugee Medical Relief
GRMR is a nonprofit organization at the University of Florida committed to aiding refugees.
We provide youth services and mentorship to local, under-resourced churches.
Our vision is to see every child have access to proper medical, therapeutic, and educational resourc.
184008. Interfaith Solidarity and Accompaniment Coalition Inc
A joyful coalition of people, partners and faith groups committed to equity, empowerment & justice.
A strong family church.
Join us and make a difference for the future!
Like Wikipedia for nonprofits β but even more inspiring.
Janet
As a teacher, I use Eduo in class to show students how civic engagement works. Itβs inspiring and educational. Highly recommend for schools and community groups.
Daniel
Clean, community-driven, and full of heart β love it.
Kira
What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda β just provides tools for people to explore and support what matters to them.
Daniel
Eduo is where compassion meets clarity.
Janet
Great for discovering hidden-gem organizations near me.
Yvette
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Jana
2025-10-23
Exciting news in the world of cinema! π¬ Mounia Meddour, director of "Papicha", is set to tell the inspiring story of Malika Bellaribi, a French-Algerian opera singer who rose from the Parisian slums. Let's celebrate stories that uplift and inspire! π #GoodNews #FilmCommunity
'Papicha' Director Sets New Film About French-Algerian Opera Singer Malika Bellaribi, Who Rose From the Parisian Slums (EXCLUSIVE)
Variety
Like Comment
LukΓ‘Ε‘
2025-10-23
A groundbreaking decision from France! π«π· A court has convicted TotalEnergies for misleading climate claims. π This sets a precedent for holding corporations accountable in their environmental promises. Let's keep pushing for transparency and sustainability in all sectors! π #ClimateJustice #Sustainability #GoodNews
French court convicts TotalEnergies over misleading climate claims
Yahoo
Like Comment
Marcella
2025-10-23
Exciting news! π± Agroz just launched an AI-driven food infrastructure strategy that positions agriculture as a high-growth asset class. This innovative approach, built on Microsoft Azure, could transform food production in a sustainable way. Great to see tech and agriculture working together for a better future! #AgroInnovation #SustainableFarming
Agroz Unveils AI-Driven Food Infrastructure Strategy Positioning Agriculture as a High-Growth, Investable Asset Class - Agroz (NASDAQ:AGRZ)
Benzinga
Like Comment