Foundation To Eradicate Duchenne Inc
Dining Away Duchenne, a premiere charity event with DC chefs is on September 25, 2018. #DiningAway18 THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE.
Founded
2002
0
X (Twitter)
115
Address
Alexandria
duchennemd.org Duchenne Mucular Dystrophy Working towards a cure 15th Annual Jeffrey Steele Concert Saturday October 15 2022 22nd Annual FORE Duchenne Monday May 12 2025 25th Annual Dining Away Duchenne Monday September 15 2025 The Story of the Foundation to Eradicate Duchenne Media Release Rockville MD The EMA approved AGAMREE vamorolone for Duchenne muscular dystrophy DMD ages 4 years and older on 18 December 2023. The US FDA previously approved AGAMREE for DMD 26 October 2023. This makes AGAMREE the first pharmacological intervention poised to receive full approval for DMD populations in both the US and EU. AGAMREE was developed utilizing an innovative public and private participation model with central governments nonprofit foundations and commercial stage research and development organizations working in coordination to advance the development program from discovery through clinical trials all the way to drug approval.
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Alexandria
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Duchenne UK has one clear aim β to end Duchenne, a devastating muscle-wasting disease.
On the 4th February 2016, our beautiful son Connor was diagnosed with Duchenne Muscular Dystrophy.
Action Duchenne has a simple vision: a world where lives are no longer limited by Duchenne muscular dystrophy.
THE DUCHENNE RESEARCH FUND (uk)
The Duchenne Research Fund has raised more than Β£6m to fund research and treatments for DMD.
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