Foundation To Eradicate Duchenne Inc
Dining Away Duchenne, a premiere charity event with DC chefs is on September 25, 2018. #DiningAway18 THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE.
Founded
2002
0
X (Twitter)
115
Address
Alexandria
duchennemd.org Duchenne Mucular Dystrophy Working towards a cure 15th Annual Jeffrey Steele Concert Saturday October 15 2022 22nd Annual FORE Duchenne Monday May 12 2025 25th Annual Dining Away Duchenne Monday September 15 2025 The Story of the Foundation to Eradicate Duchenne Media Release Rockville MD The EMA approved AGAMREE vamorolone for Duchenne muscular dystrophy DMD ages 4 years and older on 18 December 2023. The US FDA previously approved AGAMREE for DMD 26 October 2023. This makes AGAMREE the first pharmacological intervention poised to receive full approval for DMD populations in both the US and EU. AGAMREE was developed utilizing an innovative public and private participation model with central governments nonprofit foundations and commercial stage research and development organizations working in coordination to advance the development program from discovery through clinical trials all the way to drug approval.
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Join us in our mission, help us save the lives of over 300,000 boys worldwide.
Our mission is to raise global awareness for Duchenne muscular dystrophy, to fund research and find a cure.
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
Our mission is to end Duchenne.
Kindness Over Muscular Dystrophy Inc
Conner is 14 years old.
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On the 4th February 2016, our beautiful son Connor was diagnosed with Duchenne Muscular Dystrophy.
Promoting and funding research into the study and cure of Duchenne Muscular Dystrophy.
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The Duchenne Research Fund has raised more than £6m to fund research and treatments for DMD.
Action Duchenne has a simple vision: a world where lives are no longer limited by Duchenne muscular dystrophy.
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Category Specifically Named Diseases Research
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News about Foundation To Eradicate Duchenne Inc from their social media (Facebook and X).
- Foundation To Eradicate Duchenne Inc
- 2017-12-01
Who loves donuts. We do. We're teaming up with Sugar Shack Donuts to bring you #DonutsforDuchenne again this. (tw) ... more
Liked (0) Commented (0)- Foundation To Eradicate Duchenne Inc
- 2017-09-13
RT @chefjoseandres: @TommyMcFLY @DuchenneMD Thank you for supporting an amazing cause. (tw)
Liked (0) Commented (0)Discussions
Odpovědí v diskuzi
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1. What strategies can we implement to increase awareness and fundraising for Duchenne Muscular Dystrophy beyond events like Dining Away Duchenne?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can collaborative models involving public, private, and nonprofit sectors improve research and development for treatments like AGAMREE for Duchenne Muscular Dystrophy?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
💚 So excited for #DiningAway18! Every bite helps us get closer to a cure for Duchenne muscular dystrophy! Let's make a difference together!
Brooklyn Simmons
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🎶 Can't wait for the 15th Annual Jeffrey Steele Concert! Every ticket sold brings us one step closer to eradicating Duchenne. Let's rock for a cause! 🌟
Brooklyn Simmons
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