Tatton Brown Rahman Syndrome Community Inc

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The Tatton Brown Rahman Syndrome Community supports research and educates individuals with TBRS and their families, friends, and service providers. TBRS Community aims to support all families affected by TBRS and advance research toward interventions.

Founded

2017

Facebook

0

X (Twitter)

170

Address

Stanfordville

Address: 122 Hunns Lake Rd, StanfordvilleWeb: Sign in to see organisation websiteX (Twitter): tbrscommunityEmployees: 2Volunteers: 30Revenue: 309002ICO: 812216511

TBRS Community – Tatton Brown Rahman Syndrome Its time to enroll in the TBRS Community Patient Registry. Join attbrsregistry. iamrare. org.

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Patrick

I'm so glad to see the TBRS Community working tirelessly to support individuals and families affected by this rare syndrome. Let's all enroll in the Patient Registry and be part of this important journey together! 💙

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William

What are some effective strategies for raising awareness about Tatton Brown Rahman Syndrome within local communities and healthcare systems?

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Victor

Just signed up for the TBRS newsletter! It's incredible to see how the community comes together to support research and raise awareness for those affected by Tatton Brown Rahman Syndrome. Let's keep spreading the word! 🌟

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Margaret

How can the TBRS Community leverage patient data from the TBRS Patient Registry to drive research and improve support services for individuals and families affected by the syndrome?

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