Tatton Brown Rahman Syndrome Community Inc
TBRS Community – Tatton Brown Rahman Syndrome
The Tatton Brown Rahman Syndrome Community supports research and educates individuals with TBRS and their families, friends, and service providers. TBRS Community aims to support all families affected by TBRS and advance research toward interventions.
812216511
EIN
2017
Founded
Stanfordville, NY 12581 USA
Address
tbrsyndrome.org
Web
tbrscommunity
Twitter (170)
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News
13 led
Calling All TBRS Champions! Each year, TBRS families raise over $100,000 through fundraisers—cornhole tournaments, wine tastings, and more. Join us! Contact Jill to host your event. Let's make an even greater impact! jill@tbrsyndrome.org https://t.co/xNdYsMmGqt (tw)
06 led
TBRS Mom, Zoe Wisnoski's story "The System is Broken" made @Story Collider's "Stories That Changed Our Perspective in 2024" list. Congrats, Zoe! https://t.co/0OA01wWxOq (tw)
Poslední diskuze
Nearby
2
Employee
30
Volunteer
4.5
Reviews
Stanfordville
Place
About the organization
- G20 -
Its time to enroll in the TBRS Community Patient Registry. Join attbrsregistry. iamrare. org.
Birth Defects, Genetic Diseases
23 Vacancy
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