Tatton Brown Rahman Syndrome Community Inc
The Tatton Brown Rahman Syndrome Community supports research and educates individuals with TBRS and their families, friends, and service providers. TBRS Community aims to support all families affected by TBRS and advance research toward interventions.
Founded
2017
0
X (Twitter)
170
Address
Stanfordville
TBRS Community – Tatton Brown Rahman Syndrome Its time to enroll in the TBRS Community Patient Registry. Join attbrsregistry. iamrare. org.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Category Birth Defects, Genetic Diseases
Další Birth Defects, Genetic Diseases
From Social media
News about Tatton Brown Rahman Syndrome Community Inc from their social media (Facebook and X).
- Tatton Brown Rahman Syndrome Community Inc
- 2025-01-13
Calling All TBRS Champions. Each year, TBRS families raise over $100,000 through fundraisers—cornhole tournaments, wine tastings, and more. (tw) ... more
Liked (0) Commented (0)- Tatton Brown Rahman Syndrome Community Inc
- 2025-01-06
TBRS Mom, Zoe Wisnoski's story "The System is Broken" made @Story Collider's "Stories That Changed Our Perspective in 2024" list. (tw) ... more
Liked (0) Commented (0)Discussions
Odpovědí v diskuzi
1
What are some effective strategies for raising awareness about Tatton Brown Rahman Syndrome within local communities and healthcare systems?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can the TBRS Community leverage patient data from the TBRS Patient Registry to drive research and improve support services for individuals and families affected by the syndrome?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
I'm so glad to see the TBRS Community working tirelessly to support individuals and families affected by this rare syndrome. Let's all enroll in the Patient Registry and be part of this important journey together! 💙
Brooklyn Simmons
Product Manager
Just signed up for the TBRS newsletter! It's incredible to see how the community comes together to support research and raise awareness for those affected by Tatton Brown Rahman Syndrome. Let's keep spreading the word! 🌟
Brooklyn Simmons
Product Manager
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