MUST WATCH: Sen. Durbin to HHS Sec. Kennedy - “Cutting medical research is giving up on the future. You can't do that. These families are counting on you, Secretary, and counting on your department, this research gives them hope to live another day." Thanks to Senator Dick Durbin and the ALS Caucus for their efforts. We highlighted these concerns in a joint letter signed by several ALS organizations which you can read here at the link below in the comments. We must protect -- and increase -- funding for ALS research to find cures for families like Brian and Sandra's and everyone impacted by ALS. (fb)

“I hope I don’t have ALS or MS,” Jessie thought one morning in 2017 when a pen suddenly felt strange in her hand. At just 47, this active mom and teacher began a journey that would change everything. Her story is a powerful reminder of why early awareness matters in ALS. Read her story: als.org/blog/jessie-towbin-my-als-origin-story (fb)