Hispanic Society for Rare Diseases

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La Sociedad Hispana de Enfermedades Raras (SHER) nace en diciembre de 2021 con el objetivo de promover y dar visibilidad, apoyo y entrenamiento a las familias. Sociedad Hispana de Enfermedades Raras en Estados Unidos

ICO

934145765

Facebook

9

X (Twitter)

10

Address

Havertown

Address: 721 Ashurst Rd, HavertownWeb: Sign in to see organisation websiteFacebook: sherusaoficialX (Twitter): sherusaoficialICO: 934145765

Hispanic Society Rare Diseases SHER | Sociedad Hispana de Enfermedades Raras en USA | Sociedad Hispana de Enfermedades Raras Hispanic Society for Rare Diseases Escucha Mas Que Raras el podcast en Espaol sobre enfermedades raras. Quienes somos. Una Asociacion que promueve la conciencia publica sobre enfermedades raras y brinda informacion y recursos en espaol a las familias de origen hispano asi como a organizaciones cientificos y profesionales de la salud enfocados en patologias poco frecuentes. Si estas interesad en unirte a nuestros esfuerzos por favor completa el formulario y nos pondremos en contacto contigo.

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Clara

2. ¿Qué papel pueden desempeñar las plataformas de redes sociales en la concienciación y educación sobre enfermedades raras dentro de la comunidad hispana?

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Matthew

¡Increíble trabajo, SHER! Es fundamental que se promueva la conciencia sobre las enfermedades raras en nuestra comunidad. Gracias por brindar apoyo y recursos en español. 👏✨

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Margot

Me encanta conocer historias inspiradoras como la de Elizabeth Gonzalez. 👩‍⚕️ Sigamos luchando juntos por un futuro mejor para todos aquellos que enfrentan enfermedades raras. 💪❤️

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Daniela

1. ¿Cuáles son los mayores desafíos que enfrentan las familias hispanas afectadas por enfermedades raras en EE. UU. y cómo podemos abordarlos de manera efectiva?

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Public Health Programs Category

Organisations with similar rank to Hispanic Society for Rare Diseases in category Public Health Programs

1041. Red Hibiscus Foundation Inc

The Red Hibiscus Foundation is a 501(c)3 non-profit, NGO that provides support in the United States and Pacific Islands to improve community health.

1042. Hispanic Society for Rare Diseases

Sociedad Hispana de Enfermedades Raras en Estados Unidos.

1043. Vasona Hill Foundation

Our mission is to support women and youth, to grow a healthy generation and reduce the number of death from lifestyle diseases by providing educational resources and tools for young families with children.

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Havertown

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