Xla Life Corp

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881192693

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Rye

Address: 180 Forest Ave, RyeWeb: Sign in to see organisation websiteICO: 881192693

Patient Advocacy Organization | XLA Life Home About Us What is XLA News Contact Us More Advocacy. XLA Life is uniting the global XLA community in communitybased activism and communityfocused advocacy. RSVP for the nextXLA LifeFireside Chat Next Fireside Chat date and time TBD We exist to unite and empower the global XLA community. Identifying the prevalence of XLA worldwide XLA Life is working on identifying the real world prevalence of people living with XLA.

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Monica

🌍💙 It’s inspiring to see XLA Life bringing the global community together! I’m so excited for the upcoming Fireside Chat - I can’t wait to learn more about how we can all make a difference for those living with XLA! #CommunityPower #XLAAdvocacy

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Luke

2. What innovative strategies can we implement to raise awareness about the prevalence of XLA and improve early diagnosis in affected communities?

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Jill

1. How can we enhance collaboration between XLA Life and other rare disease organizations to create more impactful advocacy initiatives?

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Ann

🤝✨ Let’s unite for a common cause! Together, we can improve the quality of life for individuals affected by XLA. Looking forward to supporting XLA Life and connecting with other advocates in our fight for better standards of care! #XLACommunity #RareDiseaseAwareness

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Rye

Organisations from Xla Life Corp

2. Seacoast Science Center, Inc.

Seacoast Science Center is a non-profit organization dedicated to marine science education, situated in Odiorne Point State Park in Rye, NH.

3. AQUATIC LIFE INSTITUTE INC

To reduce the suffering of aquatic animals in the food system.

5. Campaign for the Westchester Childrens Museum Inc.

A vibrant, playful learning hub with opportunities for kids and their grown-ups to create, build, discover, and explore.

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