Alexander's Way Research Fund Inc
We promote the development of a treatment or cure for the rare genetic disease known as myofibrillar myopathy 6, (MFM6). This disease is a severe form of muscular dystrophy which progresses rapidly, and is fatal to children and adolescents. We fund research and encourage collaboration among scientists who are working on this disease. We are confident that a treatment is achievable. It is only a question of time. But, it is urgent for the affected children that a cure be found as soon as possible.
ICO
814159597
Web
alexandersway.org
Address
Sheffield
HOME | alexandersway Alexander39s Way Research Fund Inc A 501 c3 approved charity contributions are tax deductible Alexander ZahGreenspan MISSION STATEMENT Alexander39s Way Research Fund is a nonprofit charitable organization that promotes international collaboration among scientists researchers and patient advocacy groups to speed up research development and delivery of treatments for children and adults affected by Bag3 myofibrillar myopathy MFM6 and other neuromuscular diseases. Marco Vignale Alexander ZahGreenspan We depend on your contributions to fund advances in science with the aim of creating a cure. April 2020 New Research Alexanders Way is proud to be supporting the work of Dr. Igor F.
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1. How can international collaboration among scientists, researchers, and patient advocacy groups be further strengthened to enhance the speed of research and treatment development for neuromuscular diseases like Bag3 myofibrillar myopathy?
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Brooklyn Simmons
2 days ago
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2. What role do public contributions and fundraising initiatives play in supporting innovative research projects within nonprofit organizations focused on rare diseases?
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Brooklyn Simmons
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Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Your dedication to finding a cure for MFM6 is truly inspiring! Together, we can support the scientists and researchers making a difference in the lives of those affected. 💪❤️

Brooklyn Simmons
Product Manager
It's heartwarming to see organizations like Alexander's Way working tirelessly for children and adults battling neuromuscular diseases. Let's all contribute and help accelerate research towards a cure! 🌟

Brooklyn Simmons
Product Manager
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