Alexander's Way Research Fund Inc
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We promote the development of a treatment or cure for the rare genetic disease known as myofibrillar myopathy 6, (MFM6). This disease is a severe form of muscular dystrophy which progresses rapidly, and is fatal to children and adolescents. We fund research and encourage collaboration among scientists who are working on this disease. We are confident that a treatment is achievable. It is only a question of time. But, it is urgent for the affected children that a cure be found as soon as possible.
814159597
EIN
Sheffield, MA 01257 USA
Address
alexandersway.org
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Alexander39s Way Research Fund Inc A 501 c3 approved charity contributions are tax deductible Alexander ZahGreenspan MISSION STATEMENT Alexander39s Way Research Fund is a nonprofit charitable organization that promotes international collaboration among scientists researchers and patient advocacy groups to speed up research development and delivery of treatments for children and adults affected by Bag3 myofibrillar myopathy MFM6 and other neuromuscular diseases. Marco Vignale Alexander ZahGreenspan We depend on your contributions to fund advances in science with the aim of creating a cure. April 2020 New Research Alexanders Way is proud to be supporting the work of Dr. Igor F.
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