Myhre Syndrome Foundation
Myhre Syndrome Foundation is dedicated to serving Myhre syndrome families by providing a network of hope and support. Join us. (MSF is a 501c(3) charity ) Myhre Syndrome Foundation is a patient advocacy organization dedicated to providing hope and improving the lives of those impacted by Myhre syndrome. We foster collaboration among all relevant stakeholders to build a strong, global community in order to advance research, as well as support, educate and advocate for those impacted by Myhre syndrome.
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Myhre Syndrome Foundation Your Custom Text Here Latest News New Research Grant for Fibrosis We are proud to announce a 450000 grant to fund a groundbreaking research project designed by Genethon collaborating with Professor Valerie CormierDaire Genomic Medicine Service for Rare Diseases NeckerEnfants Malades Hospital in France. Read more here Myhre Masterpieces Art Auction for Rare Disease Day Were thrilled to announce a special Rare Disease Day 2025 eventthe Myhre Masterpieces Art Auction. Were inviting members of the Myhre community to create oneofakind artworks that will be featured in our art auction. Learn more here New Data from Patient Registry We are delighted to share the latest Myhre Syndrome Patient Registry data and we want to express our gratitude to the Scientific Committee for creating the report.
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Birth Defects, Genetic Diseases Category
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