International FOP Association, Inc.
Fund research to find a cure for FOP while supporting individuals and families through education, public awareness and advocacy. To fund research to find a cure for FOP while supporting, connecting and advocating for individuals and their families, and raising awareness worldwide.
Founded
1988
0
X (Twitter)
816
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2146946
IFOPA - International Fibrodysplasia Ossificans Progressiva Association New tshirts tote bags and more for FOP Awareness Day 2025 Shop the Awareness Day Store before April 4 New tshirts tote bags and more for FOP Awareness Day 2025 Shop the Awareness Day Store before April 4 Save the date for our In Memoriam Candle Lighting on April 30 Memorial candles available in the FOP Awareness Day store until April 4 Save the date for our In Memoriam Candle Lighting on April 30 Memorial candles available in the FOP Awareness Day store until April 4 Were grateful for these generous champions of our mission Meet our dedicated monthly donors Were grateful for these generous champions of our mission Meet our dedicated monthly donors Your support gives hope to the FOPcommunity Join our Focus on Possibilities Monthly Donors Your support gives hope to the FOPcommunity Join our Focus on Possibilities Monthly Donors The FOP Registry 2023 Annual Report is out Discover the latest insights from patients like you The FOP Registry 2023 Annual Report is out Discover the latest insights from patients like you The IFOPA is a 501c3 nonprofit organization that provides hope to individuals with FOP and their families through education and support programs while funding research to find a cureand raising awarenessfor the rare genetic condition fibrodysplasia ossificans progressiva FOP. The IFOPA was founded in 1988byJeannie Peeper who had never met anyone else with the disease. This isolation was typical before the IFOPA was formed andJeanniesgoal was to bring people with FOP together. Today the IFOPA is the umbrella organization for people with FOP worldwide and the place for FOP families to come foradvocacyeducation and support.
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