Friends of FSH Research
Volunteer Run non-profit funding FSH Muscular Dystrophy research. Our mission is to find an effective treatment or cure. FSH or FSHD, (Facioscapulohumeral Dystrophy) is a degenerative muscular disease for which there is no treatment or cure. With increased public awareness & research funding, a cure is possible. The specific objectives and purposes of the corporation shall be: 1. To encourage, promote and fund increased scientific and clinical research for FSH with the goal of identifying treatment and a cure for the disease. 2. To conduct fundraising efforts and solicit grants and contributions from individuals, private foundations and others, in order to sponsor research to advance the study and understanding of FSH muscular dystrophy. 3. To disseminate information about FSH and encourage additional public support for FSH research by raising public awareness of the need for research funding.
Founded
2004
X (Twitter)
620
Address
Kirkland
Home :: Friends of FSH Research Join our Circle of Friends Receive updates about our research and events Connect with us on social media Accelerating Research Since 2004 The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board staff volunteers and worldclass scientists are fully committed to transparent reproducible and transformative science that will inspire hope for people with FSHD. Learn more Latest News Over 8.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Fund Raising and/or Fund Distribution Category
Organisations with similar rank to Friends of FSH Research in category Fund Raising and/or Fund Distribution
Fuel at Jewell hosts charity car and motorcycle shows at the Jewell Group in Davenport, Iowa.
224. AMERICAN FOREGUT SOCIETY FOUNDATION
The AFS mission: To help guide both the diagnosis and management of Foregut disease through collaboration between Gastroenterologists and Foregut Surgeons.
226. Its All Good Foundation Inc
Cookies 4 A Cure is a Holiday and Special events fundraiser for Pediatric Brain Tumor research.
227. With Grace Initiative A NJ Nonprofit Corporation
Take the initiative.
Health - General & Rehabilitative N.E.C. Category
Organisations with similar rank to Friends of FSH Research in category Health - General & Rehabilitative N.E.C.
501(c)(3)Changing lives one breath at a time�Free Yoga to underserved communities�Yoga for menta.
589. INSTRUMENTS OF HEALING INC
IoH creates interactive musical experiences that inspire our peers in recovery from life challenges.
Founded in 2004, A Smile for Kids (ASK) is dedicated to improving the self-confidence, health and resilience of underserved youth throughout Oregon by providing equitable access to orthodontic care.
Nerve, Muscle, and Bone Research Category
Organisations with similar rank to Friends of FSH Research in category Nerve, Muscle, and Bone Research
48. Indiana Parkinson Foundation
Indiana Parkinson's provides exercise, support, and education for those with PD and their families.
A non-profit organization raising funds to support research for Duchenne Muscular Dystrophy.
Kirkland
Organisations from Friends of FSH Research
Peyvand is a non-profit organization serving as an empowering bridge between cultures & peoples.
Nuevo Foundation is a nonprofit which aims to inspire kids to be curious, confident, and courageous by discovering the world of STEM.
48. Bridle Trails Park Foundation
Established to protect, maintain and enhance Bridle Trails State Park.
The Tollycraft Boating Club is a group of boating enthusiasts who: a) own a Tollycraft, or b) are .
Similar organisations
Similar organisations to Friends of FSH Research based on mission, location, activites.
Established in 2005, Pushing Boundaries is Washington State's only intensive exercise therapy center focused on regaining function in those paralyzed due to injury or illness.
Seattle’s hub for holistic cancer treatment services and cutting edge oncology research.
Our mission is to save lives by improving pre-hospital emergency care.
Our mission to accelerate innovation and research to improve the quality of life for FGFR patients.
Similar Organisations Worldwide
Organisations in the world similar to Friends of FSH Research.
THE DUCHENNE RESEARCH FUND (uk)
The Duchenne Research Fund has raised more than ÂŁ6m to fund research and treatments for DMD.
Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease.
Shake It Up Australia Foundation Trust (au)
Shake It Up Australia Foundation together with our partners at The Michael J.
Shake It Up Australia Charitable Trust (au)
Shake It Up Australia Foundation together with our partners at The Michael J.
Interesting nearby
Interesting organisations close by to residence of Friends of FSH Research
We are a 501 (c)(3) charitable organization that is dedicated to helping patients, families, and researchers with resources and support to overcome Pediatric Cancer.
Peyvand is a non-profit organization serving as an empowering bridge between cultures & peoples.
Similar social media (620)
Organisations with similar social media impact to Friends of FSH Research
191748. Greater New Port Richey Main Street Inc
Comic Books and Guitars all under one roof in downtown New Port Richey, Florida.
191750. Open Space Arts Organization, Inc.
People For Art For the People.
Join us and make a difference for the future!
Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!
Michelle
The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
Daniel
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Catherine
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Yvette
Clean, community-driven, and full of heart — love it.
Catherine
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Jessica
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Emil
2025-10-23
🌟 Exciting news for aspiring entrepreneurs! Girlboss Media is relaunching its iconic podcast, inspiring a new wave of ambition and supporting women in business! 💪✨ #Girlboss #WomenEmpowerment
Girlboss Media Relaunches Its Iconic Podcast With a Fresh Look, All-Star Host, and a New Era of Ambition
Benzinga
Like Comment
Magda
2025-10-23
A new California union proposal aims to tax billionaires to protect healthcare for low-income individuals—showing that solidarity and support for community wellness can lead to real change! #HealthForAll #Solidarity
California union proposes taxing billionaires to offset Medicaid cuts
ABC News
Like Comment