Friends of FSH Research
Volunteer Run non-profit funding FSH Muscular Dystrophy research. Our mission is to find an effective treatment or cure. FSH or FSHD, (Facioscapulohumeral Dystrophy) is a degenerative muscular disease for which there is no treatment or cure. With increased public awareness & research funding, a cure is possible. The specific objectives and purposes of the corporation shall be: 1. To encourage, promote and fund increased scientific and clinical research for FSH with the goal of identifying treatment and a cure for the disease. 2. To conduct fundraising efforts and solicit grants and contributions from individuals, private foundations and others, in order to sponsor research to advance the study and understanding of FSH muscular dystrophy. 3. To disseminate information about FSH and encourage additional public support for FSH research by raising public awareness of the need for research funding.
Founded
2004
X (Twitter)
620
Address
Kirkland
Home :: Friends of FSH Research Join our Circle of Friends Receive updates about our research and events Connect with us on social media Accelerating Research Since 2004 The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board staff volunteers and worldclass scientists are fully committed to transparent reproducible and transformative science that will inspire hope for people with FSHD. Learn more Latest News Over 8.
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From Social media
News about Friends of FSH Research from their social media (Facebook and X).
- Friends of FSH Research
- 2025-03-09
National Institutes of Health has stopped considering new grant applications, delaying decisions about how to spend millions of dollars on research into diseases ranging from heart disease & cancer to Alzheimer's & allergies. (tw) ... more
Liked (0) Commented (0)- Friends of FSH Research
- 2024-05-19
RT @CarrinoFSHD: We will match the donations made to @FSHresearch to support new FSHD researchers. (tw) ... more
Liked (0) Commented (0)Discussions
Odpovědí v diskuzi
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1. How can community engagement strategies enhance fundraising efforts for FSHD research and awareness initiatives?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. What role do social media platforms play in connecting patients and families affected by FSHD with ongoing research and support services?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So inspired by the work being done by Friends of FSH Research! Together, we can make a difference and bring hope to those affected by FSHD. 💪❤️ #CureFSHD
Brooklyn Simmons
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Let’s keep pushing for research and awareness! Every contribution counts and brings us one step closer to finding a cure for FSHD. Join the circle and be part of this incredible journey! 🌟 #FriendsOfFSHResearch
Brooklyn Simmons
Product Manager
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