Lcc Foundation Inc
The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease. We advocate funding research efforts that will identify new treatments, therapies, and ultimately a cure for LCC. We seek to raise awareness of LCC thus increasing the probability of earlier diagnosis and treatment.
ICO
881908603
0
Web
thelccfoundation.org
Address
Lake St Louis
Labrune Syndrome - The LCC Foundation Leukoencephalopathy with Calcifications and Cysts LCCLabrune Syndrome Welcome to the LCC Foundation Have you or someone you love been diagnosed with Leukoencephalopathy with calcifications and cysts LCC or Labrune Syndrome. You are in the right place. You are not alone and there is hope. CFC 22895 Pledging begins in September View our GuideStarCandid Profile Introducing the Official LCCLabrune Syndrome Awareness Day March 24th.
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Discussions
Odpovědí v diskuzi
1
What are some effective strategies we can use to raise awareness for LCCLabrune Syndrome on social media, especially leading up to Awareness Day on March 24th?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we support families affected by LCCLabrune Syndrome in navigating the challenges of diagnosis and treatment, given the limited research and resources available?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Thank you LCC Foundation for all the amazing work you do to support families affected by LCC! Together, we can raise awareness and bring hope to those in need! #LCCAwareness
Brooklyn Simmons
Product Manager
🌟 March 24th is a day to unite and share our stories! Let’s spread the word about LCCLabrune Syndrome and support the incredible families dealing with this challenge. Every voice matters! #LCCFoundation #HopeForLCC
Brooklyn Simmons
Product Manager
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