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The Emmett Goodfellow Foundation Together We Can Make a Difference Join us in our mission to support families affected by Autosomal Recessive Polycystic Kidney Disease ARPKD About The Emmett Goodfellow Foundation Emmett James Goodfellow Born on September 29 2022 Emmetts time on this earth was tragically brief as he passed away cradled in his parents arms on October 22 2022 due to complications from Autosomal Recessive Polycystic Kidney Disease ARPKD. Though his days were few each one was filled with profound love hope and an indescribable joy that touched everyone who had the privilege of knowing him. His resilient spirit and the immeasurable love we felt for him will forever be etched in our hearts and serve as a testament to his lasting impact on our lives. Our Mission The founders of The Emmett Goodfellow Foundation are profoundly moved by the boundless strength resilience and spirit of children battling ARPKD.
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Emmett Goodfellow Foundation
๐๐จ๐๐๐ฒ ๐ข๐ฌ ๐๐๐ ๐๐ฐ๐๐ซ๐๐ง๐๐ฌ๐ฌ ๐๐๐ฒ A day to honor & raise awareness for the warriors, families, and researchers fighting every day against ๐๐ฎ๐ญ๐จ๐ฌ๐จ๐ฆ๐๐ฅ ๐๐๐๐๐ฌ๐ฌ๐ข๐ฏ๐ ๐๐จ๐ฅ๐ฒ๐๐ฒ๐ฌ๐ญ๐ข๐ ๐๐ข๐๐ง๐๐ฒ ๐๐ข๐ฌ๐๐๐ฌ๐ (๐๐๐๐๐) ๐ ๐๐๐ฐ ๐๐๐๐ญ๐ฌ ๐๐๐จ๐ฎ๐ญ ๐๐๐๐๐: โข ARPKD is a rare but severe genetic disease. โข Roughly 1 in 3 babies do not live to be one month old. โข Those who survive past one month face a childhood of complications due to: o high blood pressure o frequent hospitalizations o liver disease o dialysis/kidney failure o organ transplants โข Life after transplant brings additional life-threatening challenges.
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Waterford
Organisations from Emmett Goodfellow Foundation
34. Conservation of Waterford Lands
COWL is a Waterford, Michigan based nonprofit.
35. Classical Christian Community of Erie
The Classical Christian Community of Erie (The C3E) is a classical education co-op, providing community days, field trips, and more to homeschooling families in western Pennsylvania and New York.
36. Emmett Goodfellow Foundation
A 501(c)3 foundation created in memory of Emmett to advocate for & support children living with ARPKD.
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Weโre the UKโs only charity dedicated to supporting and providing information to everyone affected by polycystic kidney disease (PKD).
CHILDREN'S ORGAN TRANSPLANT SOCIETY OF BC (ca)
COTS improves the lives of children requiring organ transplants, and gives them hope for a brighter future.
Welcome to the official Facebook Page for Emmett's Genies, a UK Registered Charity that works to provide opportunities and experiences to make life-long memories for critically ill children and their families.
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A 501(c)3 foundation created in memory of Emmett to advocate for & support children living with ARPKD.
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233883. Emmett Goodfellow Foundation
A 501(c)3 foundation created in memory of Emmett to advocate for & support children living with ARPKD.
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