CTNNB1 SYNDROME AWARENESS WORLDWIDE

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CTNNB1 Syndrome refers to complications resulting from either a mutation or deletion of the CTNNB1 gene. Our mission is to create awareness of CTNNB1 Syndrome; provide information about symptoms, diagnosis, treatments, and therapies; and connect affected families.

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821953231

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Dayton

Address: 6077 Far Hills Ave #150, DaytonWeb: Sign in to see organisation websiteX (Twitter): ctnnb1orgICO: 821953231

CTNNB1 Syndrome | Ctnnb1.org CTNNB1. org HOME More The first two facebook link requires acceptance to closedfacebook groups. The first is for parents only and the second is for extended family members. Site 20172020by CTNNB1 Syndrome Awareness Worldwide CSAW.

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George

I'm so grateful for the resources and community provided by CTNNB1 Syndrome Awareness Worldwide. Let's keep spreading the word and helping each other! 🌟 #StrongerTogether

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Simone

Sending love and support to all families affected by CTNNB1 Syndrome. Together, we can raise awareness and provide hope! 💙 #CTNNB1Awareness

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Cathy

2. How can support networks for families affected by CTNNB1 Syndrome be strengthened to ensure they have access to necessary resources and emotional support?

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George

1. What strategies can we implement to raise awareness about CTNNB1 Syndrome among healthcare professionals and the general public?

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Dayton

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