NR2F1 FOUNDATION

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Empowering families and individuals living with rare #NR2F1 mutations through education, awareness and research. The NR2F1 Foundation works to empower families and individuals living with rare NR2F1 mutations thro NR2F1 Foundation empowers individuals and families living with rare NR2F1 mutations through education, awareness and research.

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832659721

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Royal Oak

Address: 416 E. Kenilworth Ave, Royal OakWeb: Sign in to see organisation websiteFacebook: NR2F1X (Twitter): nr2f1foundationRevenue: 136148ICO: 832659721

NR2F1 Foundation - For those with rare NR2F1 gene mutation Welcome to the NR2F1 Foundation. We are a registered 501c3 nonprofit organization dedicated to those living with rare variants on the Nr2f1 gene. These variants cause a neurodevelopmental disorder called BoschBoonstraSchaaf optic atrophy syndrome BBSOAS. context httpsschema.

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NR2F1 FOUNDATION

For the third year, the NR2F1 Foundation has an incredible team of athletes riding in the Million Dollar Bike Ride on Saturday, June 14th. We are very excited that #BBSOAStrong, Leo, will also be joining the team for his second year riding with parents Ross & Megan. This year we need to raise a minimum of $205,000 to fund our research roadmap projects and operating costs.

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Andrea

- What initiatives or resources could the NR2F1 Foundation implement to better support families navigating the challenges associated with rare genetic disorders?

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NR2F1 FOUNDATION

Help support #BBSOAStrong Edith's friend Conor has he rides 54 miles from Clapham Common in London to Brighton Beach to raise money for the NR2F1 Foundation. Conor is riding to support the ongoing efforts of the NR2F1 Foundation to learn more about BBSOAS and fund research in the hope of finding treatments. Every contribution could make a real difference in the BBSOAS community.

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John

- How can we improve awareness and understanding of NR2F1 mutations and Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) within the broader healthcare community?

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William

🌟 This foundation is a beacon of hope for families facing the challenges of NR2F1 mutations. Grateful for all the support and education you provide. Together, we can make a difference! 💪 #NR2F1Foundation

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Jill

❤️ Absolutely love what the NR2F1 Foundation is doing! Empowering families and raising awareness is so important for those affected by rare mutations. Keep up the amazing work! #BBSOAS

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