Louies Huwe

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Stafford

Address: 508 Crab Apple Dr, StaffordWeb: Sign in to see organisation websiteFacebook: huwe1geneICO: 861930096

HUWE1 gene - sharing experiences of HUWE1 gene variants and syndromes Sharing experiences ofHUWE1 gene variants Home What is HUWE1. Family stories Research About HUWE1. org Louiex27s Huwe HUWE1 Data Collection Program More HUWE1 COMMUNITY Raising awareness and sharing experiences of HUWE1related genetic conditions around the world WHAT IS HUWE1. Newly diagnosed or looking for more information on HUWE1related genetic conditions.

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Catherine

Thank you for creating such an informative space for families like ours! Together, we can share our stories and help each other navigate the challenges of HUWE1-related conditions. 😊

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Bonnie

So grateful for this community and the support it provides! It’s amazing to see families come together to raise awareness about HUWE1 gene variants. ❀️

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Eric

How can families affected by HUWE1-related genetic conditions support each other through their experiences and journeys?

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Goldie

What strategies can we implement to raise awareness about HUWE1 gene variants in the general public and healthcare communities?

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Birth Defects, Genetic Diseases Category

Organisations with similar rank to Louies Huwe in category Birth Defects, Genetic Diseases

219. Kansas Fasd Support Network Inc

Connecting Kansas families affected by FASD (Fetal Alcohol Spectrum Disorders).

220. Evangelism International Inc

Go into all the world and preach the Good News to everyone.

221. Louies Huwe

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223. Global Nutrition Empowerment

Global Nutrition & Empowerment (GNE) is a 501(c)(3) non-profit organization located in Albany, OR.

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Stafford

Organisations from Louies Huwe

44. Ash & Elm Dance Company

Ash & Elm Dance Co.

45. MEADOWS PLACE PRESCHOOL

We seek to inspire hearts in Meadows Place to grow, learn, and love through Christian education, exe.

46. Louies Huwe

Looking for information on HUWE1 gene variants.

47. Texas Regulators Volleyball Club

Texas Regulators is here to give the younger generation of our community the opportunity to improve .

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OUR MISSION: To improve the lives of everyone with Huntington's disease and their families.

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Project 8p aims to accelerate the translation of scientific research into therapies and treatment and advocate for the 8p community.

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Faith for Hayden is a non-profit organization created to raise money for Schaaf-Yang Syndrome research.

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WILLIAMS SYNDROME FOUNDATION LIMITED (uk)

Williams Syndrome is a rare congenital disorder that occurs sporadically in approx 1 per 18,000 births in the UK.

FOXG1 RESEARCH FOUNDATION (AUSTRALIA) LTD (au)

The FOXG1 Research Foundation is the global organization dedicated to a cure for FOXG1 syndrome.

RARE CHROMOSOME DISORDER SUPPORT GROUP (uk)

Support, Information and networking to help those with rare chromosome & gene disorders and their families.

GLUT1 DEFICIENCY UK (uk)

A parent led charity, dedicated to improving the lives of those affected by Glut1 Deficiency.

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Spina Bifida Association of America

Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of all those affected by Spina Bifida.

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Similar social media (386)

Organisations with similar social media impact to Louies Huwe

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