ICO
811450999
Web
sclerodermainfo.org
Address
Madison
Scleroderma Education Project Patient Education Clinician Resources Research Patient Education Clinician Resources Research Patient Education Patient focused information about scleroderma from the basics to advanced information about diagnosis and treatment options Clinician Resources Researchbased information on systemic sclerosis including current diagnostic criteria EULAR treatment recommendations and ANA and antibody testing Research Learn about our efforts to develop new treatments that target the preendothelial damage stages of systemic sclerosis Newest Posts Pulsed Plasma Exchange PPE Patient 2 6Year Update At this point there are an estimated two dozen patients worldwide on my pulsed therapeutic . Talking to Your Doctor About Trying Pulsed Plasma Exchange. Invite a Hematologist into the Discussion As more and more patients are now starting trials of pulsed therapeutic plasma exchange PPE . Pulsed Plasma Exchange PPE treatments must be continued indefinitely Currently there are about a dozen systemic sclerosis patients on the pulsed plasma exchange PPE .
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Welcome to our page where we offer support & information to those affected by Scleroderma & Raynaud's.
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Discussions
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1. What are the most effective ways to educate patients about the latest treatment options and research related to scleroderma?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can we improve communication between patients and clinicians to ensure that discussions about new therapies, like Pulsed Plasma Exchange, are as productive as possible?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the important work the Scleroderma Education Project is doing! 💜 Education and research are key to finding better treatments for everyone affected by this condition. Let's spread the word!
Brooklyn Simmons
Product Manager
Kudos to everyone at Scleroderma Education Project for their dedication to supporting patients and clinicians alike! Together, we can make a difference in the lives of those facing scleroderma. 🌟
Brooklyn Simmons
Product Manager
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