Voices of Alzheimer's

Voices of Alzheimer's is a U.S. nonprofit organization dedicated to empowering individuals living with Alzheimer's and other cognitive illnesses. The organization aims to promote equitable access to innovative treatments and care, ensuring that the voices and choices of those affected are respected and prioritized in healthcare decisions.

Mission and Vision

Voices of Alzheimer's focuses on increasing awareness of issues affecting people with Alzheimer's and other dementias. The mission is centered around empowering these individuals by providing reliable information that aids in advocating for policies enhancing their independence and dignity. The organization's vision is for a society that respects and supports the well-being and autonomy of people living with Alzheimer's.

Key Priorities

• Advocacy: Voices of Alzheimer's mobilizes and supports members to advocate effectively with policymakers. This involves leveraging personal experiences to drive policies that improve quality of life and marshalling evidence on the impact of policies regarding innovations in diagnosis and treatment.
• Education: The organization educates the public on the shifting landscape of Alzheimer's prevention and treatment research, promoting understanding of the disease and its management.
• Access to Care: A key priority is ensuring fair access to research, prevention, diagnostics, treatment, and care for all individuals affected by Alzheimer's.

Initiatives

One of the notable initiatives of Voices of Alzheimer's is the creation of a Bill of Rights for People Living with Alzheimer's Disease. This document aims to outline and protect the rights and dignity of individuals with Alzheimer's.

Leadership and Advocacy

The organization is led by individuals with deep personal connections to Alzheimer's, including its CEO, Jim Taylor, who has been a caregiver to his wife Geri since her diagnosis in 2012. Taylor is also an FDA-appointed Alzheimer's patient advocate and has been involved in various advocacy roles, including the New York State Council for Alzheimer's Disease and Related Illnesses.

Impact

Voices of Alzheimer's seeks to catalyze a political and social movement to improve prevention, treatment, and care for millions of families affected by Alzheimer's and related cognitive illnesses. Through its advocacy and educational efforts, the organization aims to foster a society where individuals with Alzheimer's can live meaningful and fulfilling lives.

Financial Information

Voices of Alzheimer's operates as a registered nonprofit organization in the United States, with an Employer Identification Number (EIN) of 88-2860183.

[1] https://www.voicesofad.com [2] https://www.voa-foundation.org [3] https://www.wellmedcharitablefoundation.org/caregiver-support-caregiver-teleconnection-events/voices-of-alzheimers/ [4] https://www.voicesofad.com/about [5] https://www.guidestar.org/profile/88-2860183