
Westyns Light
we are a nonprofit with emphasis on bringing awareness for CAH Congenital Adrenal Hyperplasia .... Westyn King Engel was born June 1, 2015, after a routine newborn screening he was diagnosed with a RARE genetic disease called CAH or Congenital Adrenal Hyperplasia due to 21-hydroxylase deficiency OR Classical CAH Salt Wasting. This is an adrenal deficiency of cortisol as well as a sodium component making it not only extremely rare, but life threatening. It falls into an endocrine disease and there is no known cure. There is so little information on this disease for communities, families, and patients as well as emergency medical responders. WESTYN’S LIGHT was created to keep his light shining through rare disease education for communities, emergency medical responders, CAH awareness, medical device developement, and research for a cure.

Westyn's Light
Westyn's Light is a U.S. nonprofit organization dedicated to increasing awareness about Congenital Adrenal Hyperplasia (CAH) and other rare diseases. The organization's mission is centered on education, particularly for communities and emergency medical responders, to improve understanding and support for individuals affected by CAH.
Origins and Mission
Westyn's Light was established to honor the legacy of its namesake, Westyn, and continues his impact through community engagement and educational initiatives. The organization aims to provide resources and support to families dealing with rare diseases like CAH.
Activities
- Education and Awareness: Westyn's Light focuses on educating communities and emergency responders about CAH, ensuring better preparedness and understanding in medical emergencies.
- Support for Medical Devices: The organization helps provide necessary medical devices to individuals requiring them, as evident in their support for Maddox from Georgia.
- Community Involvement: They engage with local schools and communities to foster support and raise funds for their causes.
Financial Overview
Financially, Westyn's Light has shown a small but growing presence, with reported revenues slightly above expenses. The organization maintains a prudent asset management structure with minimal liabilities.
Affiliations
Westyn's Light is noted to have connections with local organizations and communities, including partnerships with educational institutions and service dog organizations like Tails for Life. The Engel family, involved with Westyn's Light, is also active in their church community at Christian Life Church in Mequon.
Edit WikiICO
844347458
800
Web
westynslight.com
Address
Colgate
What is Adrenal Insufficiency Congenital Adrenal Hyperplasia CAH 4th Annual Race Saturday June 3rd 2023University Lake School Hartland We would like to introduce you to Westyns little brother Waylon who also suffers from SWCAH. Also Waylons service dog Bear who we have now partnered with Tails for Life. WESTYNS STORY Maddox Fundraiser Video University Lake School Westyns School held a fundraiser for Westyns Light and the 4th grade class donated all their proceeds of the class business sales. With these two donations Westyns Light was able to help provide necessary medical devices to a little boy Maddox from Georgia.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations

Uplifting the human spirit in 16 states, 4 U.

Uplifting the human spirit in 16 states, 4 U.
Similar Organisations Worldwide

Kidswest Western Sydney Paediatricfundraising Inc (au)
Kids West Western Sydney Paediatric Fund Raising Inc.

The Active LightWorks Charity was formed in 2006 to coordinate the provision of low cost and free Complementary therapy to those who need it most.

Westcare Community Services Incorporated (au)
Based in the heart of Penrith, WestCare Community Services exists to Restore Dignity & Hope to People in Need.

Brighter Days Foundation Inc. (au)
BIKES, CARS, MUSIC : A family friendly fun fundraising festival held annually on the Labour Day Weekend.
More from Colgate

At MVP (Motion Volleyball Program) we motivate kids to be the best they can be in the sport of volle.

Equine Assisted Therapy and Learning for personal growth or healing trauma, PTSD, depression, stress and anxiety and more.
Similar social media (800)

The Theatre Gap Initiative (TGI) is a nonprofit college-prep program for the BIPoC community.

BRATTLEBORO DEVELOPMENT CREDIT
A nationally recognized powerhouse in rural economic development, serving Windham County, VT.

UNITED WAY OF WASHINGTON COUNTY-EAST
Our local United Way is building better lives in the heart of Washington County.

Serving as the statewide association representing licensed irrigation professionals in Texas since 1965.

DOWN SYNDROME ASSOCIATION OF ACADIANA
Legal and Consulting Firm.
Category Specifically Named Diseases Research

Muscular Dystrophy Association
MDA is the #1 voluntary health organization in the US for people living with neuromuscular diseases.

Cystinosis Research Network, Inc.
The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th.

Cosmopolitan Diabetes Foundation Inc
Cosmopolitan International is a chartered not-for-profit civic service organization that was founded.
Discussions
Odpovědí v diskuzi
1
- How can we better educate the public about Congenital Adrenal Hyperplasia (CAH) and its impact on families affected by the disorder?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- What strategies can we implement to increase community engagement and participation in fundraising events like the 4th Annual Race for CAH awareness?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💖 Absolutely inspired by the incredible work that Westyn's Light is doing to raise awareness for CAH! Let's continue to spread the word and support families like Waylon's. Together, we can make a difference! 💪✨

Brooklyn Simmons
Product Manager
🌟 So proud of Westyn and all the amazing support from the community! Every step taken in this race is a step closer to awareness and understanding of CAH. Let’s keep shining a light on this important cause! 🏃♀️🏅

Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google