Westyns Light
we are a nonprofit with emphasis on bringing awareness for CAH Congenital Adrenal Hyperplasia .... Westyn King Engel was born June 1, 2015, after a routine newborn screening he was diagnosed with a RARE genetic disease called CAH or Congenital Adrenal Hyperplasia due to 21-hydroxylase deficiency OR Classical CAH Salt Wasting. This is an adrenal deficiency of cortisol as well as a sodium component making it not only extremely rare, but life threatening. It falls into an endocrine disease and there is no known cure. There is so little information on this disease for communities, families, and patients as well as emergency medical responders. WESTYNβS LIGHT was created to keep his light shining through rare disease education for communities, emergency medical responders, CAH awareness, medical device developement, and research for a cure.
Westyn's Light
Westyn's Light is a U.S. nonprofit organization dedicated to increasing awareness about Congenital Adrenal Hyperplasia (CAH) and other rare diseases. The organization's mission is centered on education, particularly for communities and emergency medical responders, to improve understanding and support for individuals affected by CAH.
Origins and Mission
Westyn's Light was established to honor the legacy of its namesake, Westyn, and continues his impact through community engagement and educational initiatives. The organization aims to provide resources and support to families dealing with rare diseases like CAH.
Activities
- Education and Awareness: Westyn's Light focuses on educating communities and emergency responders about CAH, ensuring better preparedness and understanding in medical emergencies.
- Support for Medical Devices: The organization helps provide necessary medical devices to individuals requiring them, as evident in their support for Maddox from Georgia.
- Community Involvement: They engage with local schools and communities to foster support and raise funds for their causes.
Financial Overview
Financially, Westyn's Light has shown a small but growing presence, with reported revenues slightly above expenses. The organization maintains a prudent asset management structure with minimal liabilities.
Affiliations
Westyn's Light is noted to have connections with local organizations and communities, including partnerships with educational institutions and service dog organizations like Tails for Life. The Engel family, involved with Westyn's Light, is also active in their church community at Christian Life Church in Mequon.
Edit WikiICO
844347458
800
Web
Sign in to see organisation website
Address
Colgate
From Social media
News about from their social media (Facebook and X).
Data about organisation
Specifically Named Diseases Research Category
Organisations with similar rank to Westyns Light in category Specifically Named Diseases Research
73. Charlotte Neuroscience Foundation
MMC is non-profit clinic treating patients and families living with memory & movement disorders.
we are a nonprofit with emphasis on bringing awareness for CAH Congenital Adrenal Hyperplasia .
Similar organisations
Similar organisations to Westyns Light based on mission, location, activites.
Muscular Dystrophy Association
MDA is the #1 voluntary health organization in the US for people living with neuromuscular diseases.
Cystinosis Research Network, Inc.
The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.
Painted Wings is a non-profit organization that was started in honor of sweet Laiken Skeltis and is dedicated to raising awareness and funds for SUIDS/SIDS.
Cosmopolitan Diabetes Foundation Inc
Cosmopolitan International is a chartered not-for-profit civic service organization that was founded.
Similar Organisations Worldwide
Organisations in the world similar to Westyns Light.
Westcare Community Services Incorporated (au)
Based in the heart of Penrith, WestCare Community Services exists to Restore Dignity & Hope to People in Need.
Kidswest Western Sydney Paediatricfundraising Inc (au)
Kids West Western Sydney Paediatric Fund Raising Inc.
The Active LightWorks Charity was formed in 2006 to coordinate the provision of low cost and free Complementary therapy to those who need it most.
Shine A Light Childhood Cancer Support (uk)
Shine A Light Childhood Cancer Support are a registered charity supporting families affected by cancer within Coventry and Warwickshire.
Interesting nearby
Interesting organisations close by to residence of Westyns Light
Cystinosis Research Network, Inc.
The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th.
Cosmopolitan Diabetes Foundation Inc
Cosmopolitan International is a chartered not-for-profit civic service organization that was founded.
we are a nonprofit with emphasis on bringing awareness for CAH Congenital Adrenal Hyperplasia .
Similar social media (800)
Organisations with similar social media impact to Westyns Light
178592. Quirky Cats Sanctuaries Inc
Quirky Cats is a 501c3 safe haven & catrescue with 2 state locations.
178593. Mission Health & Education in the Congo
MIHEC: Mission Health & Education in the Congo.
we are a nonprofit with emphasis on bringing awareness for CAH Congenital Adrenal Hyperplasia .
Welcome to MetaSport, a new youth soccer club with an uncommon approach to a traditional game .
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
"Great news from Houston! π Apple has officially launched production at its new AI plant, paving the way for the region to become a major tech hub. Excited to see how this boosts innovation and job opportunities! #AI #TechForGood #PositiveChange"
Apple quietly launches production at new Houston AI plant
Houston Chronicle
Like Commentπβ‘ Exciting news for Denver! A new EV charging station has opened in the underserved Sloan's Lake community, making electric vehicle access easier for everyone. π Let's support green initiatives and keep pushing for sustainable solutions! #EV #Sustainability #CommunityEmpowerment
New electric vehicle charging station in underserved Denver community part of metro-wide expansion
CBS News
Like Comment