Rare Olive Org Inc
Home - Rare Olive
Our mission is to push forward the scientific understanding and treatment options for a rare neurodevelopmental disorder. We hope to connect with other families impacted by this disease and ultimately find a cure.
920771031
EIN
Kensington, MD 20895 USA
Address
rareolive.org
Web
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Poslední diskuze
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Kensington
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About the organization
- H20 -
JollyFest tickets are on sale now. Parents fighting to cure LNPK In June 2022 Olive was diagnosed with an ultrarare brain disease caused by a single gene mutation in LNPK Lunapark. She was the first known case in the United States and 1 of 5 in the world. As of 2023 there are 21 known cases and 2 children have passed away from this disease.
Birth Defects, Genetic Diseases Research
23 Vacancy
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