Rare Olive Org Inc
Our mission is to push forward the scientific understanding and treatment options for a rare neurodevelopmental disorder. We hope to connect with other families impacted by this disease and ultimately find a cure.
ICO
920771031
Web
rareolive.org
Address
Kensington
Home - Rare Olive JollyFest tickets are on sale now. Parents fighting to cure LNPK In June 2022 Olive was diagnosed with an ultrarare brain disease caused by a single gene mutation in LNPK Lunapark. She was the first known case in the United States and 1 of 5 in the world. As of 2023 there are 21 known cases and 2 children have passed away from this disease.
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Discussions
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How can community events like JollyFest effectively raise awareness and funds for rare diseases like LNPK syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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What role do you think genetic testing plays in the early diagnosis and management of rare conditions such as LNPK?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌟 So excited for JollyFest! Every ticket sold helps us move closer to finding a cure for LNPK. Thank you, Rare Olive Org Inc, for your dedication to this vital cause! 💚
Brooklyn Simmons
Product Manager
💖 Let's make a difference together! Every dollar from JollyFest goes a long way in supporting Olive and all those affected by LNPK. Can't wait to see everyone there! 🎉
Brooklyn Simmons
Product Manager
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