Rare Olive Org Inc
Our mission is to push forward the scientific understanding and treatment options for a rare neurodevelopmental disorder. We hope to connect with other families impacted by this disease and ultimately find a cure.
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920771031
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Kensington
Home - Rare Olive JollyFest tickets are on sale now. Parents fighting to cure LNPK In June 2022 Olive was diagnosed with an ultrarare brain disease caused by a single gene mutation in LNPK Lunapark. She was the first known case in the United States and 1 of 5 in the world. As of 2023 there are 21 known cases and 2 children have passed away from this disease.
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Kensington
Organisations from Rare Olive Org Inc
1. KENSINGTON UNITED METHODIST CHURCH
The United Methodist Church is a worldwide connection of close to 10 million members in over 100 countries including Africa, Asia, Europe and the United States.
2. American Childhood Cancer Organization
Founded in 1970, ACCO is the oldest and largest grassroots childhood cancer organization in the U.
Building Community, Neighbor to Neighbor.
4. NATIONAL ASSOCIATION FOR CHILDREN OF ADDICTION
Using our network of the most respected experts in the field, NACoA provides solutions to address these impacts effectively.
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Similar Organisations Worldwide
Organisations in the world similar to Rare Olive Org Inc.
The Luminesce Alliance is a world-leading paediatric research co-operative, established to harness the strengths of its partner organisations to unlock future prevention, treatments and ultimately, cures, for childhood illnesses.
The Lowe Syndrome Trust is the only charity for the disease in the UK and is extremely small and voluntary.
THE CHILDREN'S RARE DISORDERS FUND LTD (uk)
The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.
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The Lancaster Cleft Palate Clinic is a not-for-profit organization dedicated to improving the quality of life of infants, children, and adults through comprehensive coordinated treatment of craniofacial conditions.
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