Ehlers-Danlos Research Foundation
We strive to promote evidence-based Neuromuscular and Musculoskeletal medicine for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder. The Ehlers-Danlos Syndrome Research Foundation (EDSRF) improves care of people with EDS / HSD and related disorders by (i) advancing innovative research on treatment modalities, efficacy, and delivery and (ii) educating healthcare providers across disciplines on the diagnosis and management of this patient population.
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Home - Ehlers-Danlos Syndrome Research Foundation EhlersDanlos SyndromeResearch Foundation Collaborate Innovate Contribute What is EhlersDanlos Syndrome. EhlersDanlos Syndromes EDS are heritable disorders in which the bodys connective tissue lacks structural integrity. People with EDS suffer from a range of systemic problems including widespread pain frequent joint subluxations or dislocations and gut and nervous system dysfunction. If untreated EDS can be highly limiting even disabling.
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From Social media
News about Ehlers-Danlos Research Foundation from their social media (Facebook and X).
- Ehlers-Danlos Research Foundation
- 2024-01-01
In this video, join P. R. I. S. M. Spine & Joint physicians, Dr. (tw) ... more
Liked (3) Commented (1)- Ehlers-Danlos Research Foundation
- 2024-01-01
We hope you enjoy this sneak peek. Wishing you a Dazzling New Year. (tw) ... more
Liked (3) Commented (0)Discussions
Odpovědí v diskuzi
1
1. What strategies can we implement to improve awareness and understanding of Ehlers-Danlos Syndromes among healthcare professionals to ensure timely diagnosis and treatment for patients?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we foster collaboration between researchers, clinicians, and individuals living with Ehlers-Danlos Syndromes to advance evidence-based practices and therapies?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the incredible work being done by the Ehlers-Danlos Research Foundation! Together, we can raise awareness and support those affected by EDS and HSD. 💙✨ #EDS #TogetherWeCan
Brooklyn Simmons
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Every effort counts! Let’s contribute to advancing research and improving the quality of life for those living with Ehlers-Danlos Syndrome. Knowledge is power! 🌟📚 #SupportEDS #ResearchMatters
Brooklyn Simmons
Product Manager
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