Hunters CMT4B3 Research Foundation Inc
Pioneering cutting edge scientific research to develop treatments for CMT4B3 patients and children with rare neuromuscular diseases! We are a global organization dedicated to finding a cure for Charcot-Marie-Tooth Disease Type 4B3. Hunters CMT4B3 Research Foundation, a non-profit 501(c)3 public charity, was founded to fund, support and advance research including the development and production of therapeutic treatments for Charcot-Marie-Tooth Disease Type 4B3 (CMT4B3) and other related inherited neuromuscular disorders. The mission of the foundation is to improve public awareness of CMT, advance education, develop gene therapies, novel drug discovery and drug repurposing treatments, as well as implement a patient registry for CMT4B3 to improve the quality of life of those suffering from this disorder.
Founded
2020
608
X (Twitter)
37
Address
Scarsdale
CMT4B3 RESEARCH FOUNDATION TOGETHER WE CAN MAKE A DIFFERENCE Hunter is battling CharcotMarieTooth Disease Type 4B3 CMT4B3 a rare and progressive neuromuscular disorder. Right now there are no cures or treatments available. But together we can drive the discovery of lifechanging breakthroughs for Hunter and thousands of children living with early onset nerve diseases. When Hunters parents Iris and Brett Schultz were told that CMT4B3 would eventually rob their son of his mobilityand possibly his sight and hearingthey refused to accept that fate.
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From Social media
News about Hunters CMT4B3 Research Foundation Inc from their social media (Facebook and X).
- Hunters CMT4B3 Research Foundation Inc
- 2025-08-07
Hunter and I are enjoying the warmer months and the sunshine. (fb) ... more
Liked (2) Commented (0)- Hunters CMT4B3 Research Foundation Inc
- 2025-08-05
Our annual Play FORE a Cure event is a fundraiser close to my heart — and this year, I’m excited to say that we’ve added something amazing: One lucky golfer has the chance to win a 2-year lease on a brand new Toyota. (fb) ... more
Liked (3) Commented (1)Discussions
Odpovědí v diskuzi
1
What innovative fundraising strategies can we implement to support the ongoing research for CMT4B3 treatments and raise awareness for rare neuromuscular diseases?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can collaborations with other organizations focused on rare diseases enhance our research efforts and increase the visibility of CMT4B3?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Incredible work you’re doing! Together, we can shine a light on CMT4B3 and bring hope to so many families. 💙 #CureCMT4B3
Brooklyn Simmons
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So inspiring to see the determination and love behind Hunter’s story! Let’s unite our efforts to support this important cause and make a real change! 🌟 #TogetherForCMT4B3
Brooklyn Simmons
Product Manager
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