
CMT4B3 RESEARCH FOUNDATION
Pioneering cutting edge scientific research to develop treatments for CMT4B3 patients and children with rare neuromuscular diseases! We are a global organization dedicated to finding a cure for Charcot-Marie-Tooth Disease Type 4B3. Hunters CMT4B3 Research Foundation, a non-profit 501(c)3 public charity, was founded to fund, support and advance research including the development and production of therapeutic treatments for Charcot-Marie-Tooth Disease Type 4B3 (CMT4B3) and other related inherited neuromuscular disorders. The mission of the foundation is to improve public awareness of CMT, advance education, develop gene therapies, novel drug discovery and drug repurposing treatments, as well as implement a patient registry for CMT4B3 to improve the quality of life of those suffering from this disorder.
853259676
EIN
2020
Founded
Scarsdale, NY 10583-2107 USA
Address
cmt4b3research.org
Web
hunt2cureCMT
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About the organization
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TOGETHER WE CAN MAKE A DIFFERENCE Hunter is battling CharcotMarieTooth Disease Type 4B3 CMT4B3 a rare and progressive neuromuscular disorder. Right now there are no cures or treatments available. But together we can drive the discovery of lifechanging breakthroughs for Hunter and thousands of children living with early onset nerve diseases. When Hunters parents Iris and Brett Schultz were told that CMT4B3 would eventually rob their son of his mobilityand possibly his sight and hearingthey refused to accept that fate.
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