Shwachman-Diamond Syndrome Alliance Inc
Shwachman-Diamond Syndrome Alliance is a nonprofit aimed at accelerating research and therapy development for this rare disease. Global collaboration is key. www.SDSAlliance.org. We are a 501(3)c nonprofit that drives research to #CureSDS Shwachman To develop therapies and cures for Shwachman-Diamond Syndrome (SDS).
Founded
2020
788
X (Twitter)
166
Address
Woburn
Welcome to the Shwachman-Diamond Syndrome Alliance - SDS Alliance About Us About SDS News Events For Patients Families For Doctors Researchers More. ShwachmanDiamond Syndrome is alifethreatening condition. We save lives by developing new therapies. Join our network of patients families doctors and researchers working together to drive research and accelerate therapy development so that people with ShwachmanDiamond Syndrome can live their lives to their full potential.
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Category Birth Defects, Genetic Diseases
Další Birth Defects, Genetic Diseases
Discussions
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What strategies can NGOs like the Shwachman-Diamond Syndrome Alliance implement to enhance global collaboration in rare disease research?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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How can the experiences of families affected by Shwachman-Diamond Syndrome inform and shape the direction of future research and therapy development initiatives?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
❤️ Thank you Shwachman-Diamond Syndrome Alliance for your relentless dedication to advancing research and improving the lives of those affected by SDS! Together, we're making a difference! #CureSDS
Brooklyn Simmons
Product Manager
🌟 So grateful for the incredible work being done to support patients and families living with Shwachman-Diamond Syndrome. Let's continue to raise awareness and drive collaboration for a brighter future! #SDSAlliance
Brooklyn Simmons
Product Manager
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