Cornelia de Lange Syndrome Foundation, Inc.

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Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.676.8166 #raredisease #cdlsawareness This page is where people can connect with each other and the CdLS Foundation staff. The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the casues and manifestations of the syndrome, and help people with a diagnosis of CdLS and others with similar characteristics make informed decisions throughout their lives. Reaching Out, Providing Help and Giving Hope.

Founded

1981

Facebook

7000

X (Twitter)

1083

Traffic

3720803

Address: 30 Tower Lane Suite 400, AvonWeb: Sign in to see organisation websiteFacebook: CdLSFoundationX (Twitter): cdlsfoundationEmployees: 13Volunteers: 250Revenue: 945606ICO: 61057497

Home | CdLS Foundation Establish Community. Educate Families. Enable Advocacy. The Cornelia de Lange Syndrome CdLS Foundation provides a host of services for anyone touched by this littleknown genetic syndrome and other isolating conditions.

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Hannah

How can we enhance collaboration between researchers and families to ensure that the most pressing needs of those affected by CdLS are addressed in ongoing studies?

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Lucy

What strategies can we implement to increase awareness of Cornelia de Lange Syndrome in underserved communities?

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Lucas

Every shared story brings hope and awareness. Let's continue to spread the word about Cornelia de Lange Syndrome and the resources available for families! Together, we can make a difference! 🌟❤️ #cdlsawareness

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Sophia

So grateful for the CdLS Foundation and the incredible support they provide to families like mine! It’s amazing to connect with others who understand our journey. 💕

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