Cornelia de Lange Syndrome Foundation, Inc.
Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.676.8166 #raredisease #cdlsawareness This page is where people can connect with each other and the CdLS Foundation staff. The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the casues and manifestations of the syndrome, and help people with a diagnosis of CdLS and others with similar characteristics make informed decisions throughout their lives. Reaching Out, Providing Help and Giving Hope.
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1981
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Home | CdLS Foundation Establish Community. Educate Families. Enable Advocacy. The Cornelia de Lange Syndrome CdLS Foundation provides a host of services for anyone touched by this littleknown genetic syndrome and other isolating conditions.
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Cornelia De Lange Syndrome Association Australiasia Inc (au)
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News about Cornelia de Lange Syndrome Foundation, Inc. from their social media (Facebook and X).
- Cornelia de Lange Syndrome Foundation, Inc.
- 2025-06-16
Share your genuine stories, emotions, and insights in your unique voice. (tw) ... more
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- Cornelia de Lange Syndrome Foundation, Inc.
- 2025-06-15
💜 Your hard work, dedication, and commitment to being a great dad are traits to be proud of. (tw) ... more
Liked (4) Commented (0)Discussions
Odpovědí v diskuzi
1
What strategies can we implement to increase awareness of Cornelia de Lange Syndrome in underserved communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we enhance collaboration between researchers and families to ensure that the most pressing needs of those affected by CdLS are addressed in ongoing studies?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the CdLS Foundation and the incredible support they provide to families like mine! It’s amazing to connect with others who understand our journey. 💕
Brooklyn Simmons
Product Manager
Every shared story brings hope and awareness. Let's continue to spread the word about Cornelia de Lange Syndrome and the resources available for families! Together, we can make a difference! 🌟❤️ #cdlsawareness
Brooklyn Simmons
Product Manager
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