Cornelia de Lange Syndrome Foundation, Inc.
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Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.676.8166
#raredisease #cdlsawareness This page is where people can connect with each other and the CdLS Foundation staff. The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the casues and manifestations of the syndrome, and help people with a diagnosis of CdLS and others with similar characteristics make informed decisions throughout their lives. Reaching Out, Providing Help and Giving Hope.
61057497
EIN
1981
Founded
Avon, CT 06001 USA
Address
cdlsusa.org
Web
cdlsfoundation
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News
06 čer
Your generous support can fuel essential research, provide resources, and build a community for individuals with CdLS and their families. 💜 Click here to support us: https://t.co/ce0DnxVUGg https://t.co/zvgP8RvQLX (tw)
05 čer
📣 Introducing Ashley Fernandez We’re so excited to welcome Ashley Fernandez to our care team at the CdLS Foundation! Ashley is not only a dedicated professional—she’s also the proud mom of Lindsey, a vibrant 13-year-old with CdLS. AFernandez@CdLSusa.org https://t.co/n2v3pJBhAQ (tw)
Poslední diskuze
What strategies can we implement to increase awareness of Cornelia de Lange Syndrome in underserved communities?Odpovědí: 3, Naposledy před 1 den detail |
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How can we enhance collaboration between researchers and families to ensure that the most pressing needs of those affected by CdLS are addressed in ongoing studies?Odpovědí: 3, Naposledy před 1 den detail |
Nearby
13
Employee
250
Volunteer
4.5
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Avon
Place
About the organization
- 860, G80, ICA -
Establish Community. Educate Families. Enable Advocacy. The Cornelia de Lange Syndrome CdLS Foundation provides a host of services for anyone touched by this littleknown genetic syndrome and other isolating conditions.
Specifically Named Diseases
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