CURE ADSSL1
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy Mission of the CURE ADSSL1 organization is to invest in research and develop treatment options for patients with rare neuromuscular disease caused by mutation in ADSSL1 gene. We have a patient community that supports each other in sharing knowledge to help manage disease symptoms and quality of life.
ICO
881577647
20
Web
Sign in to see organisation website
Address
Glendale
Cure for ADSSL1 gene myopathy Striving for Treatment For ADSSL1 Myopathy Patients We are working with leading medical researchers and rare disease experts to develop a treatment for patients with neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene. Striving for Treatment For ADSSL1 Myopathy Patients We are working with leading medical researchers and rare disease experts to develop a treatment for patients with neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene. Striving for Treatment For ADSSL1 Myopathy Patients We are working with leading medical researchers and rare disease experts to develop a treatment for patients with neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene. About Our Organization We are a patientled nonprofit organization with the mission to find a cure for ADSSL1 Myopathy a rare neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Specifically Named Diseases Category
Organisations with similar rank to CURE ADSSL1 in category Specifically Named Diseases
355. Jalia Kagingo Diabetes Foundation Inc
Jalia Kagingo Diabetes Foundation (JKDF) helps you or a loved one get the support to prevent, treat and manage diabetes.
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy.
358. CTNNB1 Gene Therapy Foundation
We have started the CTNNB1 Gene Therapy Foundation in Texas to support gene therapy trials for children with CTNNB1 syndrome.
Glendale
Organisations from CURE ADSSL1
199. Positive Network Alliance Inc
PNA is an IRS approved 501(c)(3) nonprofit charity primarily serving homeless, impoverished, and special needs children and their families.
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy.
Similar organisations
Similar organisations to CURE ADSSL1 based on mission, location, activites.
The Corneal Dystrophy Foundation
http://www.
Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteonecrosis) that makes it painful to walk.
Similar Organisations Worldwide
Organisations in the world similar to CURE ADSSL1.
CURE MYOTONIC DYSTROPHY UK CHARITY (CDM) (uk)
Cure DM supports families living with Myotonic Dystrophy DM1 and DM2 (with a particular focus on congenital and childhood onset DM1) their carers and loved ones.
MYOTONIC DYSTROPHY SUPPORT GROUP (uk)
To offer assistance, support and information to those people affected by Myotonic Dystrophy, their carers and families.
Infantile Neuro Axonal Dystrophy is a rare inherited disorder.
DANIEL FERGUSON LGMD FOUNDATION LTD (au)
The Daniel Ferguson LGMD Foundation is a charitable organisation established to improve the quality of life of people living with Limb Girdle Muscular Dystrophy.
Interesting nearby
Interesting organisations close by to residence of CURE ADSSL1
NATIONAL UREA CYCLE DISORDERS FOUNDATION
Join us in our fight to conquer urea cycle disorders.
Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteonecrosis) that makes it painful to walk.
Non profit foundation working to help Huntington’s disease families in Latin America living in poverty.
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy.
Similar social media (20)
Organisations with similar social media impact to CURE ADSSL1
244864. Eggleston Youth Centers Inc
Eggleston Youth Centers, Inc.
I never stoptrying to become qualified for the job.
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy.
244867. New Entra Casa Corporation
We are a Perinatal Program for women with Addiction & Co-Occurring Issues.
Join us and make a difference for the future!
Clean, community-driven, and full of heart — love it.
Eve
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Michelle
I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
Janet
Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
Pamela
Finally, a clear and organized way to explore local and global charities.
Paul
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Michelle
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Laura
2025-10-25
"Inspiring to see John and Laura Arnold lead by example, donating nearly half their fortune while still alive, proving that giving back is the ultimate wealth!"
Meet the billionaire couple who not only signed The Giving Pledge but actually delivered -- donating nearly half their fortune while still alive
Yahoo! Finance
Like Comment
Robin
2025-10-25
"Thrilled to hear Mahant Swami Maharaj received the 'Achievement in Building Better Communities' award! His work with BAPS is a true inspiration, building bridges and fostering unity across the globe. 🌍✨ #PositiveNews #Community #Inspiration"
BAPS chief Mahant Swami Maharaj honoured for building better communities worldwide
Social News XYZ
Like Comment
