CURE ADSSL1
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy Mission of the CURE ADSSL1 organization is to invest in research and develop treatment options for patients with rare neuromuscular disease caused by mutation in ADSSL1 gene. We have a patient community that supports each other in sharing knowledge to help manage disease symptoms and quality of life.
ICO
881577647
20
Web
cure-adssl1.org
Address
Glendale
Cure for ADSSL1 gene myopathy Striving for Treatment For ADSSL1 Myopathy Patients We are working with leading medical researchers and rare disease experts to develop a treatment for patients with neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene. Striving for Treatment For ADSSL1 Myopathy Patients We are working with leading medical researchers and rare disease experts to develop a treatment for patients with neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene. Striving for Treatment For ADSSL1 Myopathy Patients We are working with leading medical researchers and rare disease experts to develop a treatment for patients with neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene. About Our Organization We are a patientled nonprofit organization with the mission to find a cure for ADSSL1 Myopathy a rare neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene.
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Discussions
Odpovědí v diskuzi
1
1. What strategies can we implement to raise awareness about ADSSL1 myopathy in the medical community and among potential research partners?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we foster collaboration between patient advocacy groups and biotech companies to accelerate the development of gene therapy treatments for rare diseases like ADSSL1 myopathy?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
We're in this together! The work being done by CURE ADSSL1 gives hope to so many families affected by this rare condition. Let's continue to support the fight for a cure! 💪❤️
Brooklyn Simmons
Product Manager
Amazing progress is being made in the research for ADSSL1 myopathy! Every step forward brings us closer to better treatments for our loved ones. Keep going! 🌟 #CureADSSL1 #Hope
Brooklyn Simmons
Product Manager
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