CURE ADSSL1
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy Mission of the CURE ADSSL1 organization is to invest in research and develop treatment options for patients with rare neuromuscular disease caused by mutation in ADSSL1 gene. We have a patient community that supports each other in sharing knowledge to help manage disease symptoms and quality of life.
ICO
881577647
20
Web
Sign in to see organisation website
Address
Glendale
Cure for ADSSL1 gene myopathy Striving for Treatment For ADSSL1 Myopathy Patients We are working with leading medical researchers and rare disease experts to develop a treatment for patients with neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene. Striving for Treatment For ADSSL1 Myopathy Patients We are working with leading medical researchers and rare disease experts to develop a treatment for patients with neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene. Striving for Treatment For ADSSL1 Myopathy Patients We are working with leading medical researchers and rare disease experts to develop a treatment for patients with neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene. About Our Organization We are a patientled nonprofit organization with the mission to find a cure for ADSSL1 Myopathy a rare neuromuscular disease caused by an inborn error of purine metabolism due to mutation in the ADSSL1 gene.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Specifically Named Diseases Category
Organisations with similar rank to CURE ADSSL1 in category Specifically Named Diseases
355. Jalia Kagingo Diabetes Foundation Inc
Jalia Kagingo Diabetes Foundation (JKDF) helps you or a loved one get the support to prevent, treat and manage diabetes.
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy.
358. CTNNB1 Gene Therapy Foundation
We have started the CTNNB1 Gene Therapy Foundation in Texas to support gene therapy trials for children with CTNNB1 syndrome.
Glendale
Organisations from CURE ADSSL1
199. Positive Network Alliance Inc
PNA is an IRS approved 501(c)(3) nonprofit charity primarily serving homeless, impoverished, and special needs children and their families.
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy.
Similar organisations
Similar organisations to CURE ADSSL1 based on mission, location, activites.
The Corneal Dystrophy Foundation
http://www.
Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteonecrosis) that makes it painful to walk.
Similar Organisations Worldwide
Organisations in the world similar to CURE ADSSL1.
CURE MYOTONIC DYSTROPHY UK CHARITY (CDM) (uk)
Cure DM supports families living with Myotonic Dystrophy DM1 and DM2 (with a particular focus on congenital and childhood onset DM1) their carers and loved ones.
Infantile Neuro Axonal Dystrophy is a rare inherited disorder.
DANIEL FERGUSON LGMD FOUNDATION LTD (au)
The Daniel Ferguson LGMD Foundation is a charitable organisation established to improve the quality of life of people living with Limb Girdle Muscular Dystrophy.
MYOTONIC DYSTROPHY SUPPORT GROUP (uk)
To offer assistance, support and information to those people affected by Myotonic Dystrophy, their carers and families.
Interesting nearby
Interesting organisations close by to residence of CURE ADSSL1
NATIONAL UREA CYCLE DISORDERS FOUNDATION
Join us in our fight to conquer urea cycle disorders.
Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteonecrosis) that makes it painful to walk.
Non profit foundation working to help Huntington’s disease families in Latin America living in poverty.
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy.
Similar social media (20)
Organisations with similar social media impact to CURE ADSSL1
244864. Eggleston Youth Centers Inc
Eggleston Youth Centers, Inc.
I never stoptrying to become qualified for the job.
501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy.
244867. New Entra Casa Corporation
We are a Perinatal Program for women with Addiction & Co-Occurring Issues.
Join us and make a difference for the future!
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Jessica
The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
Yvette
I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
Daniel
Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
Lucy
Eduo is where compassion meets clarity.
Eve
Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Stacy
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Lukáš
2025-10-26
🌟 Amazing to see our community come together! Volunteers on the SW Side are collecting food for those in need amidst rising prices. 🤝 Let’s support each other and ensure no one goes hungry! 💙 #CommunitySupport #GoodNews #KindnessMatters
Volunteers collecting food on SW Side for those in need amid high prices, looming SNAP benefits halt
ABC7 Chicago
Like Comment
Monika
2025-10-26
🌱🥚 Amazing news! EGGcellent has launched EGGstender, a plant-based coating that revolutionizes egg preservation and reduces spoilage! 🎉 Let's celebrate innovative solutions in reducing food waste! 💚 #SustainableLiving #PositiveChange #Eduo_org
EGGcellent Revolutionizes Egg Preservation with EGGstender
Barchart.com
Like Comment