Kruzn for A Kure Foundation

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Kruzn For A Kure Foundation is a non-profit organization funding research for an extremely rare genetic disease & fatal type of dwarfism, #SIOD. Our mission is to provide life-saving research funding for children diagnosed with SIOD Our mission is to spread awareness about Schimke Immuno-Osseous Dysplasia, a rare and fatal form of dwarfism. We are dedicated to finding a cure, and showing support to those who have been diagnosed and battling rare diseases. While also fundraising to support research at Stanford University.

Founded

2016

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34000

X (Twitter)

842

Address

MUSCLE SHOALS

Address: PO BOX 2752, MUSCLE SHOALSWeb: Sign in to see organisation websiteFacebook: KruznforaKureX (Twitter): KruznforakureEmployees: 2Revenue: 573314ICO: 813843682

Kruzn For A Kure Foundation | Funding SIOD Research Finding a cure for Schimke Immuno Osseus Dysplasia SIOD Our Mission Our Purpose Providing a place of hope for SIOD families Meet Our Founders We are the Davenport family. As you can see we have the two of the cutest kids on the planet with the sweetest personalities. Kruz Paizlee rarely meet a stranger but their life is different from others. On June 30th 2016 our son was diagnosed with a rare genetic and incurable disease called Schimke Immuno Osseous Dysplasia SIOD.

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Martha

πŸ’™ Thank you, Kruzn for A Kure Foundation, for shining a light on SIOD and providing hope to families like the Davenports. Together, we can make a difference! #HopeForSIOD

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Diana

2. How can partnerships with universities and research institutions enhance the effectiveness of organizations focused on funding research for rare genetic diseases such as Schimke Immuno Osseous Dysplasia?

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Jill

🌟 It's inspiring to see such dedication to finding a cure for SIOD! Let's rally together and support this vital research. Kruz and Paizlee are true warriors! πŸ’ͺ #KruznForACure

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Michael

1. What are some innovative fundraising strategies that NGOs like Kruzn for A Kure Foundation can adopt to raise awareness and support for rare diseases like SIOD?

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Research Institutes and/or Public Policy Analysis Category

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16. Alliance for Patient Access

AfPA is a national network of policy-minded health care providers who advocate for patient-centered care.

17. University of Kansas Medical Center Research Institute

The University of Kansas Medical Center offers educational programs and clinical training through its schools of Health Professions, Medicine and Nursing.

18. Kruzn for A Kure Foundation

Our mission is to provide life-saving research funding for children diagnosed with SIOD.

19. FAMILIES USA FOUNDATION INC

Families USA is a national nonprofit, nonpartisan organization dedicated to the achievement of high-quality, affordable health care for all.

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MUSCLE SHOALS

Organisations from Kruzn for A Kure Foundation

1. Kruzn for A Kure Foundation

Our mission is to provide life-saving research funding for children diagnosed with SIOD.

2. International Fertilizer Development Center

IFDC is an independent non-profit organization that combines innovative research, market systems development, and partnerships to spread sustainable agricultural solutions for improved soil health, food security, and livelihoods around the world.

3. Listerhill Foundation

Since 1952, we have been a nonprofit financial cooperative improving lives in our community.

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