Kruzn for A Kure Foundation

Kruzn For A Kure Foundation | Funding SIOD Research

Kruzn For A Kure Foundation is a non-profit organization funding research for an extremely rare genetic disease & fatal type of dwarfism, #SIOD. Our mission is to provide life-saving research funding for children diagnosed with SIOD Our mission is to spread awareness about Schimke Immuno-Osseous Dysplasia, a rare and fatal form of dwarfism. We are dedicated to finding a cure, and showing support to those who have been diagnosed and battling rare diseases. While also fundraising to support research at Stanford University.
813843682
EIN
2016
Founded
MUSCLE SHOALS, AL 35662 USA
Address
kruznforakurefoundation.com
Web
Kruznforakure
Twitter (842)
KruznforaKure
Facebook (34000)

News

Poslední diskuze

Nearby

Contact
Kruzn for A Kure Foundation logo
Kruzn for A Kure Foundation
+ Follow
2
Employee
4.5
Reviews
MUSCLE SHOALS
Place
About the organization

- 256, E05 -

Finding a cure for Schimke Immuno Osseus Dysplasia SIOD Our Mission Our Purpose Providing a place of hope for SIOD families Meet Our Founders We are the Davenport family. As you can see we have the two of the cutest kids on the planet with the sweetest personalities. Kruz Paizlee rarely meet a stranger but their life is different from others. On June 30th 2016 our son was diagnosed with a rare genetic and incurable disease called Schimke Immuno Osseous Dysplasia SIOD.

Research Institutes and/or Public Policy Analysis
23 Vacancy More Detail