17q12 Foundation

Follow Message Edit

Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research. ​ Our goal is to support individuals and families with chromosome 17q12 deletion syndrome or 17q12 duplication syndrome while raising awareness, providing up to date information, and seeking research. Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research.

ICO

823118200

Facebook

1400

X (Twitter)

55

Address

Ankeny

Address: 2407 SE Delaware Avenue #1006, AnkenyWeb: Sign in to see organisation websiteFacebook: 17q12FoundationX (Twitter): 17q12FoundationICO: 823118200

17q12 Foundation HOME ABOUT US CONTACT INFO DONATE GET INVOLVED RESEARCH More Become a member of the 17q12 Family Latest News The 17q12 Foundation and the National Organization for Rare Disorders NORD launched a study with global reach to research chromosome 17q12 deletion syndrome and chromosome 17q12 duplication syndrome. Published April 16 2024 Continue reading Every generous donation goes toward our mission of supporting the 17q12 community. Thank you for the support. Click here to learn more about how you can help support the growing 17q12 community.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Anna

2. How can we leverage social media to raise awareness about chromosome 17q12 deletion and duplication syndromes effectively?

Like Comment
Sophia

❀️ So grateful for the work the 17q12 Foundation is doing to support families affected by this rare syndrome! Every little bit helps in raising awareness and advancing research. Let's all get involved! πŸ™Œ

Like Comment
Rachel

1. What strategies could the 17q12 Foundation implement to enhance community engagement and support for families affected by 17q12 syndromes?

Like Comment
Andrew

This is amazing news about the study launch with NORD! πŸ’ͺ Together, we can make a difference for the 17q12 community and bring more attention to these important issues. Let's spread the word! πŸŒπŸ’–

Like Comment
Collected information

Data about organisation

Birth Defects, Genetic Diseases Category

Organisations with similar rank to 17q12 Foundation in category Birth Defects, Genetic Diseases

151. LANCASTER CLEFT PALATE CLINIC

The Lancaster Cleft Palate Clinic is a not-for-profit organization dedicated to improving the quality of life of infants, children, and adults through comprehensive coordinated treatment of craniofacial conditions.

152. Cerebral Palsy of Westchester Inc

Advancing the independence, productivity & full citizenship of people with developmental disabilities.

153. 17q12 Foundation

Our goal is to support individuals and families with chromosome 17q12 deletion syndrome or 17q12 duplication syndrome while raising awareness, providing up to date information, and seeking research.

154. Pku Organization of Illinois

A nonprofit organization and resource for local & worldwide families dealing with Phenylketonuria.

More from Birth Defects, Genetic Diseases

Ankeny

Organisations from 17q12 Foundation

24. Miracle Travel Works Inc

Miracle Travel Works provides financial assistance to families seeking urgent medical treatment for t.

25. TRAILHEAD INTERNATIONAL BUILDERS INC

Faith based nonprofit organization that raises funds to build churches/community center facilities, develop sports centers for at-risk youth, and provide rapid food relief in developing nations.

26. 17q12 Foundation

Our goal is to support individuals and families with chromosome 17q12 deletion syndrome or 17q12 duplication syndrome while raising awareness, providing up to date information, and seeking research.

27. Ankeny Golf & Country Club Ankeny

A private-member owned country club featuring a beautiful 9 hole golf course and great social enviro.

28. The Hope Foundation of Kenya, Inc

The Hope Foundation of Kenya.

More from Ankeny

Similar organisations

Similar organisations to 17q12 Foundation based on mission, location, activites.

Minnesota Pku Foundation

The Minnesota PKU Foundation is a non-profit organization dedicated to support for individuals and f.

Cystic Fibrosis Foundation

Pursuing a cure for cystic fibrosis and supporting people with CF to live long, fulfilling lives.

Proof Alliance

We deliver a full range of education, awareness and support around fetal alcohol spectrum disorders.

Fragile X Resource Center of Missouri

The mission of the Fragile X Resource Center of Missouri is to benefit the lives of individuals with Fragile X Disorders and their families through support, education, public awareness, and advocacy.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to 17q12 Foundation.

WILLIAMS SYNDROME FOUNDATION LIMITED (uk)

Williams Syndrome is a rare congenital disorder that occurs sporadically in approx 1 per 18,000 births in the UK.

RARE CHROMOSOME DISORDER SUPPORT GROUP (uk)

Support, Information and networking to help those with rare chromosome & gene disorders and their families.

INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION (uk)

Providing support and information about Prader-Willi syndrome to those who need it most.

KLEEFSTRA SYNDROME UK (uk)

Information, updates and advice about Kleefstra Syndrome, hosted by Kleefstra Syndrome UK.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of 17q12 Foundation

17q12 Foundation

Our goal is to support individuals and families with chromosome 17q12 deletion syndrome or 17q12 duplication syndrome while raising awareness, providing up to date information, and seeking research.

More Interesting nearby

Similar social media (1455)

Organisations with similar social media impact to 17q12 Foundation

143953. Foundation for the Advancement of Music & Education, Inc., The

FAME's mission is to give every young musician the best opportunity to succeed in life by providing music training and academic support.

143955. 17q12 Foundation

Our goal is to support individuals and families with chromosome 17q12 deletion syndrome or 17q12 duplication syndrome while raising awareness, providing up to date information, and seeking research.

143957. EASTERN CAROLINA COMMUNITY FOUNDATION

Perhaps you've been thinking for some time how you can give back to your community, the Pee Dee regi.

Similar social media
Join us

Join us and make a difference for the future!

As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.

Brooklyn Simmons
Daniel

Finally, a clear and organized way to explore local and global charities.

Brooklyn Simmons
Kira

Eduo is where compassion meets clarity.

Brooklyn Simmons
Lucy

I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness

Brooklyn Simmons
Janet

Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.

Brooklyn Simmons
Daniel

What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda β€” just provides tools for people to explore and support what matters to them.

Brooklyn Simmons
Brian
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Zdenka 2025-10-24

Opinion: The Cowichan ruling doesn't end private property, it tests our honour

Yahoo

Like Comment
Lubos 2025-10-24

Exciting news! 🌍 USBC partners with Uphold and Vast Bank to launch the first retail tokenized deposits, making access to U.S. dollar accounts a reality for everyone! This is a game-changer for financial inclusivity! πŸ’°βœ¨ #GoodNews #FinancialInclusion #Tokenization

USBC Partners with Uphold and Vast Bank to Launch the First Retail Tokenized Deposits, Designed to Provide Worldwide Access to U.S. Dollar Deposit Accounts - USBC (AMEX:USBC)

Benzinga

Like Comment
Peter 2025-10-24

πŸ’™πŸ’ͺ It's heartwarming to see sports teams like the Miami Dolphins making a difference in the fight against cancer! Their 'Crucial Catch' initiative is a perfect example of how athletes can inspire positive change in communities. Let's tackle cancer together! #CrucialCatch #SpreadAwareness

Miami Dolphins help cover cancer screenings for NFL's 'Crucial Catch' initiative - WSVN 7News | Miami News, Weather, Sports | Fort Lauderdale

7 News Miami

Like Comment