17q12 Foundation
Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research. Our goal is to support individuals and families with chromosome 17q12 deletion syndrome or 17q12 duplication syndrome while raising awareness, providing up to date information, and seeking research. Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research.
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17q12 Foundation HOME ABOUT US CONTACT INFO DONATE GET INVOLVED RESEARCH More Become a member of the 17q12 Family Latest News The 17q12 Foundation and the National Organization for Rare Disorders NORD launched a study with global reach to research chromosome 17q12 deletion syndrome and chromosome 17q12 duplication syndrome. Published April 16 2024 Continue reading Every generous donation goes toward our mission of supporting the 17q12 community. Thank you for the support. Click here to learn more about how you can help support the growing 17q12 community.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Category Birth Defects, Genetic Diseases
Další Birth Defects, Genetic DiseasesFrom Social media
News about 17q12 Foundation from their social media (Facebook and X).
- 17q12 Foundation
- 2022-05-14
Check out all of the great resources available thanks to the @prisma_group_ . (tw) ... more
Liked (1) Commented (0)- 17q12 Foundation
- 2018-03-31
We asked families, "What do you wish more people understood about 17q12 disorders. (tw) ... more
Liked (3) Commented (0)Discussions
Odpovědí v diskuzi
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1. What strategies could the 17q12 Foundation implement to enhance community engagement and support for families affected by 17q12 syndromes?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we leverage social media to raise awareness about chromosome 17q12 deletion and duplication syndromes effectively?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
❤️ So grateful for the work the 17q12 Foundation is doing to support families affected by this rare syndrome! Every little bit helps in raising awareness and advancing research. Let's all get involved! 🙌
Brooklyn Simmons
Product Manager
This is amazing news about the study launch with NORD! 💪 Together, we can make a difference for the 17q12 community and bring more attention to these important issues. Let's spread the word! 🌍💖
Brooklyn Simmons
Product Manager
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