17q12 Foundation

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Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research. ​ Our goal is to support individuals and families with chromosome 17q12 deletion syndrome or 17q12 duplication syndrome while raising awareness, providing up to date information, and seeking research. Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research.

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823118200

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Ankeny

Address: 2407 SE Delaware Avenue #1006, AnkenyWeb: Sign in to see organisation websiteFacebook: 17q12FoundationX (Twitter): 17q12FoundationICO: 823118200

17q12 Foundation HOME ABOUT US CONTACT INFO DONATE GET INVOLVED RESEARCH More Become a member of the 17q12 Family Latest News The 17q12 Foundation and the National Organization for Rare Disorders NORD launched a study with global reach to research chromosome 17q12 deletion syndrome and chromosome 17q12 duplication syndrome. Published April 16 2024 Continue reading Every generous donation goes toward our mission of supporting the 17q12 community. Thank you for the support. Click here to learn more about how you can help support the growing 17q12 community.

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Rachel

1. What strategies could the 17q12 Foundation implement to enhance community engagement and support for families affected by 17q12 syndromes?

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Anna

2. How can we leverage social media to raise awareness about chromosome 17q12 deletion and duplication syndromes effectively?

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Andrew

This is amazing news about the study launch with NORD! πŸ’ͺ Together, we can make a difference for the 17q12 community and bring more attention to these important issues. Let's spread the word! πŸŒπŸ’–

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Sophia

❀️ So grateful for the work the 17q12 Foundation is doing to support families affected by this rare syndrome! Every little bit helps in raising awareness and advancing research. Let's all get involved! πŸ™Œ

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