Spastic Paraplegia Foundation, Inc.
Spastic Paraplegia Foundation - Hereditary Spastic Paraplegia & Primary Lateral SclerosisF
Hereditary Spastic Paraplegia #hsp & Primary Lateral Sclerosis #pls together we are #HSPandPLS The Spastic Paraplegia Foundation is committed to promoting research to find cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis, to educating people and their families affected by these conditions to help them live full and productive lives and to creating opportunities for mutual support and sharing.
43594491
EIN
2002
Founded
O'Fallon, MO 63368-6202 USA
Address
sp-foundation.org
Web
SpasticWorld
Twitter (313)
2635761
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News
Poslední diskuze
What strategies can we implement to increase awareness and understanding of HSP and PLS in the broader community?Odpovědí: 3, Naposledy před 1 den detail |
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How can we effectively engage and support new members who have recently been diagnosed with HSP or PLS?Odpovědí: 3, Naposledy před 1 den detail |
Nearby
100
Volunteer
4.5
Reviews
O'Fallon
Place
About the organization
- 615, G12, G96, G48 -
Rare Disease Day is February 28 2025 Rowan has SPG4 After being diagnosed with HSP I found the SPF website and attended their annual conference. It was great to learn about HSP PLS and meet others like me. We have multiple committees for anyone to join Education Ambassadors Fundraising Marketing Advocacy and SPF Kids Join our newest outreach effort What is it. Welcome to Spastic Paraplegia Foundation Inc.
Fund Raising and/or Fund Distribution Neurology, Neuroscience Brain Disorders
23 Vacancy
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