Spastic Paraplegia Foundation, Inc.

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Hereditary Spastic Paraplegia #hsp & Primary Lateral Sclerosis #pls together we are #HSPandPLS The Spastic Paraplegia Foundation is committed to promoting research to find cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis, to educating people and their families affected by these conditions to help them live full and productive lives and to creating opportunities for mutual support and sharing.

Founded

2002

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Address: 6952 Clayborne Dr, O'FallonWeb: Sign in to see organisation websiteX (Twitter): SpasticWorldVolunteers: 100Revenue: 1324845ICO: 43594491

Spastic Paraplegia Foundation - Hereditary Spastic Paraplegia & Primary Lateral SclerosisF Rare Disease Day is February 28 2025 Rowan has SPG4 After being diagnosed with HSP I found the SPF website and attended their annual conference. It was great to learn about HSP PLS and meet others like me. We have multiple committees for anyone to join Education Ambassadors Fundraising Marketing Advocacy and SPF Kids Join our newest outreach effort What is it. Welcome to Spastic Paraplegia Foundation Inc.

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Lucy

Love the work you’re doing at the Spastic Paraplegia Foundation! It’s so inspiring to see a community come together to support and uplift each other. 💙 #HSPandPLS

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Andrew

How can we effectively engage and support new members who have recently been diagnosed with HSP or PLS?

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Clara

Excited for Rare Disease Day on February 28th! Let’s raise awareness and continue to push for research and cures for HSP and PLS! Together, we can make a difference! 🌟 #RareDiseaseDay #HSPandPLS

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Robin

What strategies can we implement to increase awareness and understanding of HSP and PLS in the broader community?

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