Mila fought hard against Batten disease, a rare fatal condition with no cure. Her story is now giving new hope to millions with genetic disease. Our mission is to find and fund paths to a cure for devastating neurological conditions like Batten disease. We are focused on helping to grow the new field of truly personal medicines which Mila’s story has opened up, and making it accessible to many more across hundreds of rare diseases. Our hope is that our work will give Mila and many others like her a second chance at life.