Kcna2 Epilepsy Inc

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Join the KCNA2 Epilepsy Global Support Community on our quest for more information, research, treatments and a cure.

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Broadview Heights

Address: 8137 Bishops Ct, Broadview HeightsWeb: Sign in to see organisation websiteFacebook: KCNA2EpilepsyICO: 861894240

Promoting Education and Awareness | Epileptic Encephalopathy KCNA2 Epilepsy Global Support Community KCNA2 Epilepsy Global Support Community KCNA2 Epilepsy Global Connection Our Founding In March 2017 a parent support group via Facebookwas initiatedto connect parents and families from around the world who are affected by KCNA2 epileptic encephalopathy. Within five years over 75 families joined sharing theirchallenges and successes as caregivers for a loved one diagnosed with KCNA2. Collectivelywe identified a significant need for more advocacy research opportunities and effective treatmentinterventions. NancyMusarraandReneeSwannackcreated the KCNA2 Epilepsy Inc.

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Hannah

1. What strategies can we implement to raise awareness and educate the public about KCNA2 epilepsy, considering its rarity and the challenges faced by affected families?

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Kcna2 Epilepsy Inc

To our families around the world… Happy Earth Day Kcna2.

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Veronica

💪 I'm so inspired by the community you're building! It's amazing to see families supporting each other and advocating for more research. Let’s keep pushing for that cure and the awareness that is so needed! 🙌

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Jennifer

❤️ Thank you, KCNA2 Epilepsy Inc! Your efforts are truly making a difference in the lives of families affected by this condition. Together, we can spread awareness and push for the research needed to find better treatments! 🌟

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Monica

2. How can we foster collaboration between families affected by KCNA2 and medical professionals to enhance research and develop more effective treatment options?

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Epilepsy Category

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