
861894240
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Broadview Heights, OH 44147 United States
Address
kcna2epilepsy.org
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About the organization
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KCNA2 Epilepsy Global Support Community KCNA2 Epilepsy Global Support Community KCNA2 Epilepsy Global Connection Our Founding In March 2017 a parent support group via Facebookwas initiatedto connect parents and families from around the world who are affected by KCNA2 epileptic encephalopathy. Within five years over 75 families joined sharing theirchallenges and successes as caregivers for a loved one diagnosed with KCNA2. Collectivelywe identified a significant need for more advocacy research opportunities and effective treatmentinterventions. NancyMusarraandReneeSwannackcreated the KCNA2 Epilepsy Inc.
Epilepsy
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