Rare By Design Inc
Creating awareness of inclusion, representation and living life positively for #PWD and #RareDiseases along with their families. Founded by @kegottsleben. Celebrating the rare that makes us unique and extraordinary, particularly those with rare diseases and disabilities. Rare by Design's primary purpose is creating awareness, inclusion and representation for individuals with rare diseases and disabilities. We work to positively support this community and their families.
ICO
862990471
1200
X (Twitter)
147
Address
Sioux Falls
Home | Rare by Design Home About Us Events Media Shop Contact More. Our Vision Values Goals Meet our Leadership Team Join Us in the Fun. Diversity is being invited to the party inclusion is being asked to dance. Verna Myers Join Us Empower and Make a Difference Rare by Design EIN 862990471Form 990InclusionIsAlwaysInRareByDesign Join our mailing list Thanks for subscribing.
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From Social media
News about Rare By Design Inc from their social media (Facebook and X).
- Rare By Design Inc
- 2025-05-27
RT @CD_SouthDakota: Have you registered for our 4th annual Run, Walk & Roll event. (tw) ... more
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1. How can we better amplify the voices of individuals with rare diseases and disabilities in mainstream media to foster greater understanding and representation?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. What initiatives can organizations like Rare By Design implement to actively promote inclusivity and positive narratives around those living with rare conditions?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So inspired by the work Rare By Design Inc is doing to uplift and include those with rare diseases! Together, we can create a world where everyone feels celebrated! 💙✨ #InclusionIsAlwaysInRareByDesign
Brooklyn Simmons
Product Manager
Love this mission! We all have something unique to offer, and it’s amazing to see a community that values and supports individuals with rare diseases and disabilities. Keep shining! 🌟 #PWD #RareDiseases
Brooklyn Simmons
Product Manager
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What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
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