Ejs Promise

EJ’S PROMISE, Inc is a nonprofit, fundraising organization created in memorial of Jackie Spears, suffered from Huntington's Disease, and Emery Elizabeth Simon, diagnosed with Trisomy 18 at birth. We strive to help others/families in similar diagnosis.

ICO

841978400

Facebook

203

Web

ejspromise.org

Address

Cincinnati

Address: 117 Stearns Ave, CincinnatiWeb: ejspromise.orgFacebook: ejspromiseICO: 841978400

HOME | My Site EJ39S PROMISE To Make A Difference Our Story EJs Promise was conceived and founded by mother and daughter Karen Sams and Elizabeth Simon. It was born out of the combined devastating events that happened in our family. E is for Emery daughtergranddaughter who was born on 122917 with a fatal genetic chromosome disorder called Trisomy 18. Emery died on 61618 at only 5 mos.

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Our Impacts

Discussions

Odpovědí v diskuzi

1

What strategies can NGOs like EJ's Promise use to effectively raise awareness and funds for families affected by rare genetic disorders?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

Odpovědí v diskuzi

1

How can we create stronger community support networks for families dealing with similar diagnoses to those faced by Jackie's and Emery's families?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

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Together, we can make a real impact in communities around the world. Help us bring hope and support.

Your work is truly inspiring! Thank you for making such a meaningful difference in the lives of families affected by these challenging conditions. 💖

Brooklyn Simmons
Brooklyn Simmons

Product Manager

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So proud of EJ's Promise and all that you do to honor Emery and Jackie! Your dedication and compassion shine through every effort. Keep up the amazing work! 🌟

Brooklyn Simmons
Brooklyn Simmons

Product Manager

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