CureGRIN Foundation

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CureGRIN is a parent-run foundation committed to improving the lives of people living with GRI disorder. #RareAsOne #GRIdisorder #raredisease CureGRIN is a parent-led foundation committed to improving the lives of those with living with a GRI disorder. CureGRIN is a parent-led foundation committed to improving the lives of people living with GRI Disorders. Our goal is simple and bold: To find cures and therapies for people living with disorders caused by variants in the GRIN, GRIA, GRIK, and GRID genes.

Founded

2019

Facebook

3900

X (Twitter)

749

Address

Boulder

Address: 4845 Pearl East Circle Ste 118, BoulderWeb: Sign in to see organisation websiteFacebook: cureGRINX (Twitter): CureGrinVolunteers: 50Revenue: 422728ICO: 834658977

Home - CureGRIN Foundation CureGRIN Foundation GRIA GRID GRIK and GRIN What are GRI Disorders. GRI Disorders are rare singlegene disorders related to the GRIA GRIK GRID and GRIN genes. Many GRI patients are nonverbal unable to walk and many cannot feed or toilet themselves. They often experience severe and frequent seizures that are not responsive to medical therapies.

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Faith

2. In what ways can we enhance community awareness about GRI disorders, and what role could social media play in this initiative?

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CureGRIN Foundation

🌟 Join us for our Second GRI Get Together for families affected by GRI Disorders in Adelaide, Australia, hosted by CureGRIN and Grin2b Foundation. 💜💙🧡💛 Attendance is FREE for GRI Families. Register now: https://lp.

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Louis

1. What are some innovative fundraising strategies that have been effective for other rare disease foundations, and how can we adapt them for CureGRIN Foundation?

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Rachel

Thank you for shining a light on GRI disorders and advocating for those who can't. Together, we're one step closer to finding a cure! #RareAsOne 🌟

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Diana

Incredible work, CureGRIN Foundation! Your dedication to improving the lives of those with GRI disorders truly inspires us all. Every contribution makes a difference! 💙 #SupportRareDisease

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