NEW HOPE RESEARCH FOUNDATION

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The New Hope Research Foundation is a non-profit organization dedicated to: - Finding a genetic cure for GM2 gangliosidosis and other lysosomal storage diseases that affect the central nervous system, and - Providing hope to patients and their families currently facing the degenerative and debilitating aspects of these diseases. To accomplish these goals, the New Hope Research Foundation coordinates, conducts, and financially supports: - Research on gene therapies and the means of correcting genetic deficiencies of the central nervous system, - Clinical studies intended to show safety and efficacy of gene therapies, - Regulatory applications to initiate clinical trials, and - Education and communication for patients and families on the related research and clinical studies.

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North Oaks

Address: 6 Charley Lake Ct, North OaksWeb: Sign in to see organisation websiteICO: 870790903

New Hope Research – Providing new hope to families facing the debilitating aspects of lysosomal storage diseases. New Hope Research The New Hope Research Foundation is a nonprofit organizationdedicated to finding a genetic cure for GM2 gangliosidosis and other lysosomal storage diseases that affect the central nervous system. The New Hope Research Foundation was established as a nonprofit organization in 2006 to support scientific research and clinical studies needed to help those neurologically affected by lysosomal storage diseases. As the initial area of focus the foundation is conducting and coordinating gene therapy research intent on finding a cure for the hexosaminidase A enzyme deficiency that causes GM2 gangliosidosis more commonly called TaySachs Disease. Great strides have been made in the scientific understanding of this disease and related gene therapies but finding a cure will still require extensive scientific research.

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πŸ’œ Amazing work being done by the New Hope Research Foundation! It's inspiring to see dedicated efforts towards finding a cure for GM2 gangliosidosis. Together, we can bring hope to families in need! #ResearchForACure

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Eva

1. What are the latest advancements in gene therapy for lysosomal storage diseases, and how can NGOs like the New Hope Research Foundation leverage these findings to expedite clinical trials?

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Kira

🌟 Thank you, New Hope Research Foundation, for your relentless pursuit of hope and healing for those affected by lysosomal storage diseases. Your commitment to research and support is truly making a difference! Keep pushing forward! πŸ™Œ #HopeForTomorrow

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Mark

2. How can the New Hope Research Foundation improve community engagement and awareness about GM2 gangliosidosis and its impact on families affected by the disease?

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