PURA SYNDROME FOUNDATION
The PURA Syndrome Foundation is a global non-profit organisation. Our mission is to support and drive research, raise awareness in the general community, as well as connect, educate, serve, and empower families impacted by PURA Syndrome. To support individuals with PURA syndrome and their families and friends. We host an annual global conference, provide networking and educational resources to families and make medical research grants to doctors and researchers doing work impacting PURA syndrome.
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812235818
2100
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Berwick
PURA Syndrome Foundation | Connecting, Educating, Serving, and Empowering Families Impacted by PURA Syndrome 2025 Conference Registration Open. Registration is now open for our 2025 PURA Syndrome Conference which will take place June 2729 2025 in Dallas Texas USA. Our mission is to support and drive research raise awareness in the general community as well as connect educate serve and empower families impacted by PURA Syndrome. OneonOne Appointments are Now Available to Help you Complete your Patient Registry.
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PURA SYNDROME FOUNDATION
2025 PURA Syndrome Conference ✨ Meet the Speakers ✨ Session: Clinicians Panel Dr. David Hunt is a Consultant Clinical Geneticist, based in Southampton, UK. He received his PhD in Molecular Pathology at University College London and completed Foundation and Medical Training in London before relocating to Southampton in 2012.
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Good News
Martin
2025-10-23
Exciting news from TU Graz! 🌟 Their research team is using 3D technology to preserve endangered Buddhist temples in the remote Dolpo region of Nepal for future generations. #CulturalHeritage #PositiveNews
TU Graz conducts research into endangered cultural heritage in the Western Himalayas
EurekAlert!
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