Lottie's Light Foundation
MISSION: Lottie's Light Foundation exists to illuminate a cure for rare diseases starting with CerTra Syndrome. VISION: We see a world in which a rare disease diagnosis is delivered to patients side-by-side with a cure. VALUES: We value collaboration, stewardship, urgency, hope, faith, and perseverance. Matthew 5:16
ICO
993300941
Web
lottieslight.org
Address
Temple
Lottie's Light Foundation | Illuminating a Cure for CerTra Syndrome Explore Our Mission and Impact Lotties Light Foundation Illuminating a Cure for CerTra Syndrome Mission Lotties Light Foundation exists to illuminate a cure for rare diseases starting with CerTra Syndrome. Vision We see a world in which a rare disease diagnosis is delivered to patients sidebyside with a cure. Values We value collaboration stewardship urgency hope faith and perseverance. Matthew 516 Join Give Volunteer Newly Diagnosed.
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Discussions
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1. What innovative strategies can NGOs adopt to raise awareness and funding for ultra-rare diseases like CerTra Syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can collaboration between patient-led organizations and pharmaceutical companies accelerate the development of therapeutics for rare conditions?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💡 So inspired by the work Lottie’s Light Foundation is doing! Together, we can shine a light on rare diseases and bring hope to families in need. Let’s illuminate a path to a cure! 💖
Brooklyn Simmons
Product Manager
🌟 Every effort counts! Grateful for the dedication of Lottie’s Light Foundation in the fight against CerTra Syndrome. Let’s spread the word and support this incredible mission! Together, we can make a difference! 🙌✨
Brooklyn Simmons
Product Manager
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