Rory Belle Foundation
The Rory Belle Foundation | The Home for NARS1 Families
We are a family run foundation established to raise funding and awareness for a gene therapy cure for the NARS1 disease.
Today, we know of about 70 worldwide patients with this rare disease, we hope to connect and educate others on this disease! To bring one more day of joy to kids and families battling NARS1 disease.
881920584
EIN
2022
Founded
Denver, CO 80220 USA
Address
therorybellefoundation.org
Web
therorybellefoundation
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About the organization
- H20 -
The Home for NARS1 Families We care for everyone touched by NARS1 disorder. We will change the future for those with NARS1 disorder by connecting families sharing knowledge with researchers and clinicians and discovering treatments. Come and join us. Meet other families support The Rory Belle Foundation or join our family of researchers and medical professionals.
Birth Defects, Genetic Diseases Research
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