AMOUR SCIENCE FOUNDATION

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Amour means ‘Resilient’ in Armenian and ‘Love’ in French. Our goal is to find a cure for Congenital Disorders of Glycosylation (#PMM2CDG), #CureCDG #RareDisease OUR VISION To find a cure for Congenital Disorders of Glycosylation (CDG) OUR MISSION Fund research OUR VISION To find a cure for Congenital Disorders of Glycosylation (CDG) OUR MISSION Fund research for developing a cure and treatment for CDG, advocate for CDG screening, raise awareness about CDG and provide assistance to CDG families.

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872127837

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507

X (Twitter)

60

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Granada Hills

Address: 13188 Whistler Ave, Granada HillsWeb: Sign in to see organisation websiteFacebook: AmourFundX (Twitter): AmourFundICO: 872127837

Amour Fund – Amour Science Foundation Amour Fund Amour Science Foundation Home OUR VISION To find a cure for Congenital Disorders of Glycosylation CDG OUR MISSION Fund research for developing a cure and treatment for CDG advocate for CDG screening raise awareness about CDG and provide assistance to CDG families. About What is PMM2CDG. PMM2 deficiencyorPMM2CDGis a very raregenetic disordercaused by mutations inPMM2. It is an autosomal recessive disorder.

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Sylvia

🌟 Together, we can make a change! Grateful for all the researchers and advocates at Amour Science Foundation working tirelessly to raise awareness and create hope for those affected by CDG. Keep up the amazing work! #PMM2CDG #RareDiseaseAwareness

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AMOUR SCIENCE FOUNDATION

When we got our rare disease diagnosis for Aram, we searched for other families. we searched to find our tribe on this journey. and we did.

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Patrick

💖 Thank you, Amour Science Foundation, for your dedication to finding a cure for CDG! Your work is inspiring and truly makes a difference for families in need. Let’s spread the word and support this vital cause! #CureCDG #LoveForCDG

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Sarah

What strategies can the Amour Science Foundation implement to effectively raise awareness about Congenital Disorders of Glycosylation in both medical communities and the general public?

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Anita

How can the foundation engage with families affected by PMM2CDG to ensure their needs and concerns are addressed in the research and advocacy efforts?

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