Malan Syndrome Foundation Inc
Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene. The Malan Syndrome Foundation's global mission is to improve the lives of affected individuals. The mission of the Malan Syndrome Foundation is to improve the lives of individuals and families affected by Malan syndrome in the global community through support, outreach and research. Provide a broad network of support to families affected by Malan syndrome and help advance access to a diagnosis Promote knowledge development, awareness and sharing of information Explore research pathways to treatments and cures, as well as enhance understanding of Malan syndrome and related disorders
ICO
833063901
1800
X (Twitter)
417
Address
Old Bridge
Nonprofit | Malan Syndrome Let39s grow hope together. What is Malan syndrome. Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene and is characterized by overgrowth intellectual disability vision andor hearing impairment skeletal anomalies epilepsy and anxiety. Key Resources Join our patient registries to advance research.
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